In despair, I typed “caregiver” into Google, planning to follow it up with “resources” or “support group.” The first search the autofill suggested, however, was “caregiver burnout.” I sighed and clicked. That morning, I’d cried my way through a miserable appointment with my husband Brad’s oncologist. The news we’d received had been no grimmer than any other development over the preceding 18 months of his treatment for a rare T-cell lymphoma, which had included a debilitating stem cell transplant. But on that hot July day in 2016, I was so exhausted by the caring grind that I could no longer cope.
As I broke down, the oncologist chided me for not taking good enough care of myself. If I didn’t, he said, how could I take care of my husband?
Fragile and overextended, I heard in that question an implication that the only point of me, as a human and not coincidentally as a woman, was to care for another person. What about my own life? Didn’t I deserve care in my own right?
I spent more than two years as Brad’s primary caregiver during the long, intense crisis phase of his illness; in the years since, as he’s endured disability and chronic illness, my responsibilities have ebbed and flowed depending on his health. During the long crisis, I was so overwhelmed, and eventually so burned out, that sometimes I fantasized about simply turning around while driving to the pharmacy or the grocery store, heading to the airport instead, and buying a ticket on any plane going somewhere semitropical.
Everyone is talking about caregiving, but it can still be difficult to find meaningful information and real stories that go deep. We read (and listen to and watch and look at) the best content about caregiving and bring you a curated selection.
Is it okay to feel angry? Is it okay to occasionally hate the person I’m caring for? What did I do to deserve this? How do I process these feelings?...
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