Caregiving means being exhausted.
So, so exhausted.
You’re being buried alive in paperwork
Or worse…you have to manage paperwork online
You have to learn everything in an instant
While juggling a million tasks
Sometimes you just can’t catch a break
And keeping on a happy face, no matter what
It feels like you’re running in circles
Did I mention tired?
It can be really isolating
So much of your social life is online
Sometimes people let you down
It changes the way you view the world
You’re ready for anything
So many things just don’t seem important anymore
But it’s also really beautiful
You learn to celebrate little victories
And people may not realize how much you do
But they appreciate it
And you know it’s worth it.
All images via Giphy
From the time your feet hit the floor in the morning til bedtime at night you are doing,running, appts, phone calls, dealing with ignorance.
Its exhaustingbut worth every mi ute
Yes – although some days and some moments, it doesn’t feel worth it.
Nailed it, but I wouldn’t trade taking care of my beloved mother for anything.
Can’t enjoy so tired :-]
#truestory
So, so true!!
Very true.
So true
Yes true
Caring for my husband for 15 yrs now. He has a form of muscular dystrophy. Nothing I do is right, good enough, etc. He has isolated me from any friends I’ve made and my family is all out of town. Always has a put down or snide comment for me. All he watches is Fox News and he thinks he is one of the hosts with the way he acts. It’s his way or no way. Monitors me like a hawk…phone calls, emails, etc. I feel like I am here only to serve him. No displays of affection. I just live day to day. Get more attention, appreciation and affection from the cat.
This is so true some days there are rewards.
Feels like- exhaustion, loneliness, doubt, frustration, depression, resentment, hostility and anger. Also feels like- love, pride, empowerment, confidence, joy, amusement, happiness, courage, and a complete sense of worth. I miss my boy, my Mikie every second. I still have these feelings, I will always have them. That fact makes me feel sad and happy at the same time.
it beautifully, s u c k s !!!
Like the last two years have been an all-nighter with a few nights mixed in when I took an hour or two nap. That’s what caregiving feels like, from a physical perspective that is. I’m happy to serve my mother but it’s tough and those who can/should help do not.
It sucks constant worry and stress and exhaustion. Not having any peace of mind. But we do what we must to take care of our loved ones
As bad as it was, I’d rather have my mother here with me. She died 12 weeks ago after my caring for her at home. She had and died from Alzheimers disease. But she was amazing.
So very sorry
So sorry for your loss!
Sorry for your loss.
I too care for Mom with Alzheimer’s..Dad is 80 and together we are trying to care for her at home. Diagnosed 5 years ago…seems like so much longer to me. Very stressful and tiring job but I wouldn’t change my desicion. Peace to you…
I took care of my husband for 16 years after his stroke. I just lost him. It had many challenges but I would do it again in a minute.
So very sorry for your loss .. take care
So sorry Carolyn! Praying for you!
I’m sorry for your loss.
Taking care of my hubby since 2007.. stroke , open heart and many other issues.. I love taking care of him ..
yes it’s challenging and I get tired and sometimes just exhausted but we take it a day at a time ..
We laugh a lot about things that happen Day to day..
The biggest challenge is with the case workers in hospitals and nursing homes who try to rush patients out too soon .. and doctors (hospitalists ) who also send patients out too soon ..
then you are in a revolving door in and out of the hospital and nursing homes and if you’re lucky you finally make it home..
The Medicare 100 day paid nursing home stay (Re-Hab ) is not good
Also needing a 3 day hospital stay before you can go to a nursing home to get rehab ..
Now we have found there are inpatient Re Hab hospitals where you don’t have to meet either of those criterias . But you still have to be assessed and qualify by the hospitals..
Also the cut off of home health physical therapy is usually too soon ..
I’m sure many of you are familiar with these issues too..
These are issues that cause unneeded stress to a caregiver ..
If a patient would get the needed care long enough he or she would spend less time in a nursing home Re Hab or hospital ..
There seems to be a disconnect between the ones that make these rules and the patients that need the services..
I’m exhausted and my life has been on hold for fours years can’t leave the house without having a sitter
Same here
Here too,going on 14 years.
It’s awful.
Rollercoaster of lows and lower lows sprinkled with some moments of joy.
It’s exhausting but I love my Mom and she wants to be home so I do what needs done and pray a lot!
I am just a call away if you need help or a break ,
It is very hard , emotional but so rewarding to know you are able to help them..
It sweet, it is hard and it is doing what has to be done. It is a thankless job for the most part but one that has to be done.
I can relate for sure.
omg i am so exhausted, i go to bed exhausted, i get up exhausted. 30 yrs in. someone was telling about a book on tape and i thought omg my mind is so full i couldn’t hear a book lol
It is exhausting, but then again it is so worth it!. Being a full time caregiver the last six months for my parents has definitely changed my perspective about things & life. Yes I feel guilty every time I get a break. Even though it’s hard to leave, when I get home for a respite I really appreciate the break. Even though I’m constantly thinking of them while I’m away. I still talk to my dad, two to three times a day.☺️
cute way to show our lives! but i love gifs!!
Exactly!!!!
Does anyone feel guilty when they do get time to themselves?
Yes
YES!!!!
IT IS A JOURNEY, BUMPS AND POT HOLES BUT THE SMILES ARE WORTH THE EFFORT.
i can for sure relate…
When you feel like you cannot go on..you go on anyway. Caregiving is not a job for all…but for the few selfless ones who refuse to give up!! Prayers for strength to get thru your days and nights!! <3
Exhaustion is an understatement … Sleep comes hit and miss ~
You learn to get through each day with a complete muddled brain, and a body drained to weakness.
Smashing
This sums it up nicely .
1.my social life is on-line—
2.my outings consist of following
A. pharmacies
B. doctors
C. lab test
E. marathon day of paying bills
F. food that cannot be delivered
3. grocery delivery…
4. occasional visit from family..
Love this! We could all use a bit of humor and this is also very accurate based upon my experiences.
Ha. Yes.