Statistics usually form the basis of awareness campaigns.
Rates of incidence, survival and mortality are humanised through personal stories, such as a child’s formative years given over to harsh and extended treatment cycles, or of a family grieving the loss of a child gone too soon.
What is rarely mentioned however are the incompatibilities of childhood cancer with the everyday expectations of social, cultural and economic life.
How many parents or guardians lose the ability to work? What percentage of the family income is lost? How much travel time is spent accessing treatments? How many relationships dissolve? How many careers are ended? What are the impacts on mental health?
The Brief, Wondrous Life of Little Leo
When Leo Babler was born with a rare and deadly genetic disorder, his parents reshaped their lives, moving to the mountains, building out an...