by External Article | Jan 30, 2023 | Caring for a Child, Finances |
Anakinra is expensive — on average, private health plans pay about $4,000 a month for it — so we needed to get approval before it would be covered. In early September, Aetna denied the request, requiring an additional test. Our doctors ordered the test and appealed.... by External Article | Aug 14, 2021 | Caregiver Stories |
After her diagnosis, my daughter’s daily routine was daunting. She took more than a dozen prescription drugs, including pancreatic enzymes at every meal to digest her food. She learned to swallow capsules as a toddler after watching me take a birth control pill. We... 
by External Article | Oct 24, 2020 | Care Work Library, Caring for a Child, Generation X |
How would she get help for a boy who is Black and mentally ill and already vulnerable to some of the worst disparities in the U.S. health-care system even before the pandemic made things worse? Who fixes a boy when his family is on government assistance and the... 
by External Article | Apr 12, 2019 | Care Work Library, Caring for a Parent, Generation X, Grief |
The cruel irony of losing your mother is that right after her death is when you will need her the most. My mother died a decade ago, when she was 57 and I was 21. She was first diagnosed with breast cancer when I was 9, but, for the most part, she made a full... by External Article | Feb 21, 2019 | 24/7 Caregiving, Care Work Library, Caring for a Grandparent, Caring for a Parent, Caring for a Romantic Partner, Finding Meaning |
Alzheimer’s is now the diagnosis Americans fear most. Fewer than half of patients diagnosed with ALZ are told. “The main framework America has available to contend with this is . . . that it’s a terrible, destructive ride all the way down and then you die,” he... by External Article | Sep 27, 2018 | Care Work Library, Caring for a Parent, Long Distance Caregiving |
My mom was diagnosed with ovarian cancer on my parents’ 36th wedding anniversary. They called me together, while I was at work, to tell me the news. Our lives suddenly became very different lives. My parents live in Ohio. I live in Washington, D.C. That’s 364 miles.... 
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