by External Article | Jun 18, 2022 | 24/7 Caregiving, Caring for a Child, Generation X, Housing, Long Term Caregiving |
His story? When Lythall was six-months-old, his mother, Irene, rushed him to CHEO where he had an emergency intubation that saved his life. He has rarely taken a breath without mechanical help since that day. He spent the next six years in CHEO’s intensive care unit,... 
by External Article | Sep 15, 2020 | Care Work Library, Death & Dying |
Robert Truog, who directs the Harvard Medical School Center for Bioethics, co-wrote the Massachusetts guidelines on rationing ventilators in April 2020. He and his colleagues considered giving the families of patients removed from ventilators the option to... 
by External Article | Sep 14, 2020 | Care Work Library, Caring for a Child |
They didn’t tell me they were going to intubate my daughter until seconds before it happened. It was 2018, and I was lying in a hospital bed, cradling her 6-month-old body and all her wires in my arms. He held me. The words of reassurance we would have offered one... 
by External Article | Sep 12, 2020 | Care Work Library, Caring for a Parent, Housing, Long Term Caregiving, Working Family Caregivers |
As A.L.S. gradually paralyzed her, while leaving her intellect intact, our years were filled with I.C.U. visits, emergency surgeries, stays in nursing homes, and wrenching conversations with strangers about the logistics of death. Because she was on a ventilator and... 
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