He Couldn’t Remember That We Broke Up
To break up with someone is to lose the imagined future you would create together, but you would always share the landscape of your collective past. If Sam could not remember, I would be alone in that landscape. His doctor said we had a window of opportunity to...
Hard Truths About Being a Married Caregiver
The priest boomed, “Do you take this man to be your lawful wedded husband, to have and to hold, in sickness and in health, ‘til death do you part?” And, I joyously whispered, “I do!” This is a version of the words so many of us promised on our wedding day as we...
The night the lights went out
I wasn’t awake for all the scary parts of my injury, but everyone I loved was. When I finally came to, I could see the fear and terror still in their eyes, even after the worst had passed. I could see it in the eyes of my poor mom and dad, who sat vigil at my bedside...
Blink once for yes
A family and their home health aids tells the story of their brother (and son) jumping off his balcony and sustaining a TBI. They’ll never know what caused him to do it. What happens next? What choices did they have to make about his care? How do they keep him...
TBI: Traumatic Brain Injury, the fallout
If someone had told me that I would be dealing with the effects of a car accident years after it occurred, I would have immediately assumed it would be due to the obvious damage to a person that results in broken bones and wheelchairs. I would never have thought of...
When all seems to be barely hanging together — Bronchitis in the Extreme
Extreme Bronchitis. That was the diagnosis we heard in the emergency room. Everything seems to be extreme when dealing with my wife’s health! I often wonder what would happen if someone said she had a mild cold and that was it? But with an immune system that is...
Looking back: our top 14 Caregiver Stories for 2014
The Caregiver Space is where we can gain strength and support through sharing our stories and reading about others’ experiences. As 2014 draws to a close, we take this opportunity to highlight posts from our Caregivers Stories series that you may have...You’re More than the Name for What You Have.
[title text=”by Gerry Arango, author of What Would Nola Do? What My Mother Taught Me about Showing Up, Being Present and the Art of Caregiving”] My friend James says he’s brain damaged. I say he has a traumatic brain injury. I hear a big difference, which...
There’s No Silver Lining: The Truth About Brain Injury from a Mother’s Point of View
Like other TBI caregivers, I never thought I would ever end up in an ICU, or rehabilitation hospital, or have the need to attend a brain injury conference…
11 ways to navigate challenges
One caregiving dad’s advice to help others navigate and cope with terrible challenges, like TBI.
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