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‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

by External Article | Jun 6, 2023 | Caring for a Parent, Long Term Caregiving | 0 comments

In our different ways, my father and I were both suffering from diseases of forgetfulness. Though I didn’t yet have a name for what was happening to him, there was some comfort in the thought that I understood a little of what he suffered. I knew the terror of lost...
‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

My father had dementia and I was his caregiver. Here’s what I wish I had known

by External Article | May 29, 2023 | 24/7 Caregiving, Caring for a Parent, Long Term Caregiving | 0 comments

In 2007, I was suddenly plunged into the role of caregiver for my then 75-year-old father, who had vascular dementia. His short-term memory was severely impaired, as were his judgment and reasoning skills. At the outset, I knew very little about dementia and next to...
‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

My partner died. Then my brother. Here’s what not to say to someone who is grieving

by External Article | Jan 28, 2022 | For Friends & Family, Grief | 0 comments

We are hardwired to say these things when someone dies because otherwise, it would be too much. Human nature is to put boundaries around the loss, so we know it’s something that happens to other people. We say that they’re in a better place or to just remember the...
The high cost of living in a disabling world

The high cost of living in a disabling world

by External Article | Nov 4, 2021 | For Friends & Family | 0 comments

The turn of the millennium was marked by a litany of good intentions and disavowals of unequal treatment – by an endorsement, as the first article of the UN convention has it, of disabled people’s right to “full and effective participation in society on an equal basis...
‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

A moment that changed me: my mother died – and I became my brother’s legal guardian

by External Article | Jul 28, 2021 | Care Work Library, Caring for a Parent, Grief, Millennial Generation | 0 comments

It was in Stansted airport’s Pink Elephant car park that I realised all the adults were going home. It was early January 2007 and we had just returned from Mum’s funeral in Derry. I watched as uncles and aunts ambled over to their cars, and there the three of us were...
What happened when a ‘wildly irrational’ algorithm made crucial healthcare decisions

What happened when a ‘wildly irrational’ algorithm made crucial healthcare decisions

by External Article | Jul 2, 2021 | Care Work Library, Finances, Long Term Caregiving | 0 comments

Because of his cerebral palsy, the 40-year-old, who works at an environmental engineering firm and loves attending sports games of nearly any type, depends on his home care support person for assistance with things most people take for granted, like meals and bathing....
Sleep-in care workers entitled to minimum wage only when awake, court rules

Sleep-in care workers entitled to minimum wage only when awake, court rules

by External Article | Mar 19, 2021 | Care Work Library, For Professional Caregivers | 0 comments

The government is under pressure to reform care laws after the supreme court ruled that support workers on “sleep-in” shifts are not required to be paid the national minimum wage for hours when they are not awake.. The decision ends a four-year legal battle involving...
Inside The Shocking Legal Guardianship Industry

Inside The Shocking Legal Guardianship Industry

by External Article | Feb 18, 2021 | Care Work Library, Long Term Caregiving | 0 comments

[The Netflix movie I Care a Lot] is fiction but the story all too familiar to thousands of Americans whose elderly parents have been entrapped by little scrutinised guardianship programmes. Many speak of a sense of helplessness in the face of system rife with the...
Would you want a robot to be your relative’s carer?

Would you want a robot to be your relative’s carer?

by External Article | Sep 10, 2020 | Care Work Library, Caregiver News, Long Term Caregiving | 0 comments

Companion robots have been trialled in care homes in the UK and Japan, but it is more generally believed by people working in the field that programming even the basic skills required to build a beneficial human relationship – empathy and attachment – are nigh on...
‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

The men who leave their spouses when they have a life-threatening illness

by External Article | Mar 30, 2020 | Caring for a Romantic Partner | 0 comments

“most people – regardless of gender – do not leave their partners when they get sick. In a 2015 paper, researchers tracked 2,701 marriages using a study on health and retirement and watched what happened when someone became unwell during a marriage: only 6% of...
Zombie debts are hounding struggling Americans. Will you be next?

Zombie debts are hounding struggling Americans. Will you be next?

by External Article | Oct 15, 2019 | Care Work Library, Finances | 0 comments

This is what happens when the government targets you for zombie debt collection. You receive a letter from your state’s department of human services claiming that you were “overissued” $4,132 in food stamp and cash benefits in the 1980s. Enclosed is a copy of the...
Why do one in five home health aides live in poverty?

Why do one in five home health aides live in poverty?

by External Article | Sep 18, 2019 | Care Work Library, Finances, For Professional Caregivers | 0 comments

Job growth in the US has broken all records and healthcare has been the leading force in that growth. But wages? Wages are another story. One that shows how women, and particularly women of color, have been left behind even in the hottest job market in US history....
‘Our goal is to halve the male suicide rate’: why no-frills therapy works for men

‘Our goal is to halve the male suicide rate’: why no-frills therapy works for men

by External Article | Mar 9, 2019 | Care Work Library, Finding Caregiver Support | 0 comments

These men are mostly working class and middle-aged; a few are in their 20s. There is one much older bloke, who chuckles: “I used to deal with my frustrations by wrapping a pool cue round someone’s head.” Over the two-hour session, the group share the ups and downs of...
‘I knew the terror of lost time’: how my father’s dementia echoed my own alcoholism

Police killings: the price of being disabled and black in America

by External Article | Jun 22, 2017 | Care Work Library, Caregiver News, Caring for a Friend, Finding Caregiver Support, For Friends & Family | 0 comments

On Sunday morning, Charleena Lyles called the Seattle police to report a burglary. She was a black woman, pregnant, the mother of four children (including a child with Down’s syndrome), living in housing for formerly homeless individuals. The police showed up, found...

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