by External Article | Dec 20, 2021 | Caring for a Child, Caring for a Sibling, Generation X, Long Term Caregiving, Millennial Generation |
Robert has cerebral palsy, and he has weathered multiple complications in his seven years. I don’t know what that’s like, to mother this beautiful boy through every hour of every day. I knew how to sister an amazing brother for thirty-one years longer than the doctors... 
by External Article | Mar 2, 2021 | Care Work Library, Caring for a Parent, Long Term Caregiving, Millennial Generation |
Gina became a caregiver at a young age. By age 6, she was emotionally responsible for her mother, her brothers and herself, and she learned to mute her own needs for the sake of others. As an adult, she’s still shaking off the long-term effects of being parentified... by External Article | Feb 23, 2021 | Care Work Library, Caregiver Stories |
Caregiving has always been hard work, and heart work. It has always been challenging, rewarding, grueling and life-giving. It has always been work worth doing, and work whose worth is challenged, or hard to quantify. And adding COVID to the mix…didn’t help. This... by External Article | Feb 16, 2021 | Care Work Library, Caring for a Client, For Professional Caregivers |
This is one episode in a series of episodes about care in America. In our previous episode, we talked about care at the end of life. And this week, we’re talking about the kind of care that picks up where we leave off. The kind of care that shows up when our loved... by External Article | Feb 9, 2021 | Care Work Library, Death & Dying |
In the second in our series on care, we’re talking about care at the end of life. It’s not just dying that is hard, it’s not just the prospect of death… it’s the recognition of it. It’s the conversation around it, which is often no conversation at all. In this... 
by External Article | Dec 1, 2020 | Care Work Library, Grief, Poetry |
When I was a kid, I watched the winter holidays shift for my family after my mother died. And this year, in the middle of the coronavirus pandemic, I lost an uncle, and not being able to gather with family to mourn him because of COVID-19 restrictions has given me new... 
by External Article | Nov 19, 2020 | Care Work Library, Caring for a Parent, Caring for a Romantic Partner, Death & Dying |
For much of their lives together, Stephanie Rinka and her husband, John, had ongoing conversations about end-of-life issues. Stephanie was a nurse, and she cared for many people suffering from incurable illnesses and debilitating traumas. Stephanie treated her... 
by External Article | Nov 22, 2019 | Care Work Library, Caring for a Grandparent, Caring for a Parent, Long Term Caregiving |
It’s hard to change roles after living a certain way for decades. Dementia — and aging in general — forces our roles with certain family members to undergo dramatic changes. Producer B.A. Parker started recording her calls with her father because she... 
by External Article | Mar 20, 2019 | After Caregiving, Care Work Library, Caring for a Parent, Working Family Caregivers |
Annabelle moved home for the last few weeks before her mother died of cancer. She focused on the details, while her brother took care of a lot of the emotional labor that Annabelle wasn’t capable of. During and after her mom’s illness, she threw herself... 
by External Article | Nov 20, 2018 | Care Work Library, Caring for a Romantic Partner, Generation X, Long Term Caregiving, Planning, Working Family Caregivers |
Three weeks after Rachel Swidenbank and Hiroki Takeuchi got married, an accident changed everything. Tune in to Death, Sex, and Money to listen to them talk about life right after the accident and discuss how things have changed and what life is like now two years... by Cori Carl | Oct 28, 2018 | Caring for a Romantic Partner, Generation X, Interviews, Long Term Caregiving, Planning, Sandwich Generation |
We love the work Kate Milliken did with MyCounterpane. Here’s a really honest, wonderful interview she did with Kysa Kelleher about meeting, marrying, and raising six kids with a husband who has MS. 
by External Article | Sep 26, 2018 | Care Work Library, Caring for a Parent, Finding Meaning, Housing, Long Term Caregiving, Millennial Generation, Sandwich Generation |
Sonia Singh talks to her friend Anjli. Anjli is now caregiver for her mom, who took care of her father for years. First her mom was living with her brother, now she’s living in a care home. You might think having the support of a care home would mean caregiving... 
by External Article | Sep 18, 2018 | Care Work Library, Caring for a Parent, Generation X, Grief |
Voicemails seemed so archaic. And then his mom was diagnosed with breast cancer. And then she was gone. Listen to the episode on Invisibilia. 
by External Article | Aug 18, 2018 | Care Work Library, Caring for a Parent, Generation X, Grief, Short Term Caregiving |
Why do so many of us feel guilty after the death of a loved one? A writer is overcome with guilt for causing her mom’s death — and suspects her dad blames her, too. She fell while walking the writer’s dog and broke her hip. A year later, she died of... by External Article | Aug 8, 2018 | After Caregiving, Care Work Library, Caring for a Parent, Finding Caregiver Support, Grief, Millennial Generation |
After his father dies of Alzheimer’s, Chris Garcia and his fellow comedians accidentally formed the Dead Parent Society. They navigate the world of grief through dark humor. Listen on Death, Sex & Money. 
by External Article | Jul 7, 2018 | Care Work Library, Caring for a Child, Caring for a Grandchild, Caring for a Sibling, Generation X, Long Term Caregiving, Millennial Generation, Occasional Caregiving, Sandwich Generation |
After an autistic man’s stim toy was mistaken for a gun, with tragic results, NPR’s Aftereffects looked into how people’s stim toys impact their every day life. When you feel overwhelmed with sensory input, as a lot of autistic people often feel,... by External Article | Jul 6, 2018 | 24/7 Caregiving, Care Work Library, Caring for a Romantic Partner, Finding Caregiver Support, Housing, Long Term Caregiving, Silent generation |
Vicki Bartholomew started a support group for wives who are caring for a husband with Alzheimer’s disease because she needed that sort of group herself. “My husband’s still living, and now I’m in an even more difficult situation — I’m... 
by External Article | Jun 6, 2018 | Care Work Library, Caring for a Romantic Partner, Generation X, Long Term Caregiving |
People associate forgetfulness with age — and dementia. But this couple navigates marriage when only one of them can form new memories like most of us. Here’s how one couple has built a life — and a memorable marriage — after stroke induced... 
by External Article | May 30, 2018 | Care Work Library, Finances, Grief, Millennial Generation |
Lindsey Kratochwill shares her experience being financially paralyzed by grief. She is the recipient of a structured settlement after the death of her mother, but she finds herself unable to bring herself to actually use the money. Listen on Bad with... 
by External Article | May 11, 2018 | Baby Boom Generation, Care Work Library, Caring for a Parent, Long Distance Caregiving, Occasional Caregiving |
A year after rehab, Jamie Brickhouse is struggling with a relapse as his mother starts to deteriorate. Normally she’s so put together, but during his parents visit to see him in NYC, it’s clear that she’s not herself anymore. After police encounters... by External Article | May 8, 2018 | After Caregiving, Baby Boom Generation, Care Work Library, Caring for a Romantic Partner, Death & Dying, Grief, Working Family Caregivers |
His wife has cancer. And is pregnant. The baby is born early. His wife starts treatment. They’re in different hospitals. And then his wife dies. A new father learns to keep going after losing the love of his life. Listen on Terrible, Thanks for... by External Article | Nov 3, 2017 | 24/7 Caregiving, Care Work Library, Caring for a Child, Caring for a Parent, Finances, Finding Caregiver Support, Finding Meaning, Generation X, Housing, Long Term Caregiving, Planning |
In the first story, Erica Silberman and her siblings struggle to figure out the best way to care for their mom after she’s diagnosed with Alzheimer’s. As a young struggling actor, it’s decided Erica should be the primary caregiver. Her mom comes to live... 
by External Article | Oct 12, 2017 | Care Work Library, Caring for a Parent, Finances, Generation X, Long Term Caregiving |
Comedian and caretaker Leighann shares about how the Proper Telephone Etiquette and Good Home Training she received as a kid is helping her do one of the things she dislikes the most: talking on the phone with doctor’s offices, pharmacies, insurance companies and... by External Article | Sep 22, 2017 | Care Work Library, Caring for a Child, Generation X |
When Tracey Segarra’s baby is born with a heart defect, she needs to choose a surgeon to save her daughter. How do you choose a surgeon? What’s more important: stats or empathy? Who chooses to operate on hearts the size of walnuts, anyway? Listen on Story... by External Article | Sep 21, 2017 | Care Work Library, Caregiver Burnout, Caregiving Relationships, Caring for a Parent, Generation X, Long Term Caregiving |
In this episode of the podcast we have an impromptu live interview with comedic storyteller Sue Schmidt and comedian Jane Condon. We are in the dressing room after our closing night show at the Peterborough Players Theater in New Hampshire. I got to commiserate with,... by External Article | Jul 17, 2017 | Care Work Library, Finances, Long Term Caregiving, Millennial Generation |
A high school student is all set to go to college in the fall…but he doesn’t show up for classes. What happened? Caregiving happened. Someone needs to take care of his dad, who has ALS. It’s easy to decide college can wait so his mom can go back to... 
by External Article | Apr 19, 2016 | Care Work Library, Caring for a Parent, Finding Meaning, Generation X, Grief, Short Term Caregiving, Working Family Caregivers |
After her father had a stroke, Amy Seimetz moved home to care for him. She juggled her work as an actor and a filmmaker while making medical decisions for her dad and providing supportive care for three years until he died. Her experience as a caregiver — facing... by External Article | Mar 16, 2016 | Care Work Library, Caring for a Sibling, Generation X, Grief, Long Distance Caregiving, Occasional Caregiving |
Danny Oquendo put his life on hold when his half brother, Avonte, disappeared from his New York City school in 2013. Three years later, his life is dramatically different. Listen to the episode on Death, Sex, and Money. 
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