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I’m a parent of two children with a brain cancer diagnosis. We’re in the middle of a long and tiring journey

I’m a parent of two children with a brain cancer diagnosis. We’re in the middle of a long and tiring journey

by External Article | Sep 20, 2022 | Caring for a Child | 0 comments

Statistics usually form the basis of awareness campaigns. Rates of incidence, survival and mortality are humanised through personal stories, such as a child’s formative years given over to harsh and extended treatment cycles, or of a family grieving the loss of a...
“I need you to just be there. I need you to hold my story.”

“I need you to just be there. I need you to hold my story.”

by External Article | Jun 22, 2021 | Care Work Library, Caring for a Child, Finding Caregiver Support, Grief, Millennial Generation | 0 comments

In September 2020, I watched from afar as Andrew and his wife, Rachel, announced that their infant daughter, Francesca was diagnosed with an atypical teratoid rhabdoid tumor in her brain. Via his Twitter account, Andrew shared the experience during her treatment and...
Trying to Convince Myself That My Son Doesn’t Have Cancer

Trying to Convince Myself That My Son Doesn’t Have Cancer

by External Article | Oct 30, 2020 | Care Work Library, Caring for a Child | 0 comments

A weird throat pain, bad breath, an inflamed tonsil. A reassuring GP saying it can probably wait a few days, but it wouldn’t hurt to go to the ER. I’m slightly reassured when we get to the emergency room. At first. It has the advantage of instantly drowning our...
How family hit twice by cancer got by: ‘One small victory at a time’

How family hit twice by cancer got by: ‘One small victory at a time’

by Guest Author | Apr 13, 2017 | Caregiver Stories | 0 comments

NEW PROVIDENCE — As Geri Payawal Shepard walked with her son to Mount Sinai’s cancer clinic in Manhattan, families with young kids buzzed around her. She stared at them for a minute, trying to figure out why so many people were outside. Then, it dawned on...
Cancer in Children Adversely Affects Parents’ Income and Employment

Cancer in Children Adversely Affects Parents’ Income and Employment

by Guest Author | Mar 1, 2017 | Caregiver News | 6 comments

Having a child with cancer led to income reductions for parents and job discontinuation among mothers in a recent study, even after adjusting for pre-diagnosis sociodemographic factors. Published early online in CANCER, a peer-reviewed journal of the American Cancer...
My journey of dealing with grief

My journey of dealing with grief

by Guest Author | Nov 28, 2015 | 24/7 Caregiving, Caregiver Stories, Caring for a Child, Grief, Long Term Caregiving, Millennial Generation | 0 comments

Simon works for a local support charity in Derby that helps other charities to form and grow. He delivers training, workshops and talks in schools and out in the community about volunteering and he also manages a community reporting project. Since Annabel’s...

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