More help needed for kids with disabilities who age out of care system, parents say

More help needed for kids with disabilities who age out of care system, parents say

For most adults, their 21st birthday is an exciting time marking another step toward independence. However, for Deane Daprato, the son of Mark Daprato and Ijeoma Ross, turning 21 in June meant he became completely dependent on their care 24/7. Mark Daprato lists some...
Turns out Mum still has a lot to teach us

‘I can’t continue to do this forever’: Families with children aging out of care seek answers

Across the country, stories are piling up as families anxiously watch their children with disabilities age out of care, graduating into a under-resourced system where programs are few and far between. “You’re isolated because you can’t leave your...
Turns out Mum still has a lot to teach us

Cake, balloons, goodbye: What happens when your special needs child ages out of the system

In the kitchen of their Toronto home, they prepare lunch for their 18-year-old daughter Gillian. Gilly, as she is affectionately called, has low-functioning autism; she’ll never be able to work or live independently.  She only knows a handful of words and relies...
Turns out Mum still has a lot to teach us

We need to talk about death, say parents of kids with life-limiting illnesses

Julie reached out to me to speak about those frantic final days and hours at Montreal’s Sainte-Justine Hospital where Kate’s doctors tried desperately to extend her life — an attitude that Julie now believes made it difficult for her, her partner Brian and...
Turns out Mum still has a lot to teach us

Still Kathryn: At 21, she cared for a mom with Alzheimer’s

Kathryn’s father moved back in to help out while they continued to look for answers. Finally, Pat got a diagnosis: early-onset Alzheimer’s disease. She was 55-years-old. “It wasn’t the news that anyone wanted to hear, especially my mom,”...
Turns out Mum still has a lot to teach us

What it’s like to have a sister with special-needs, aka Boo-Bear

Ellery and Clare are sisters to Gilly, who has special needs. Gilly has high-needs autism meaning that she will never work or live independently. She requires constant 24-hour care and supervision. For Clare and Ellery, being Gilly’s sister has shaped how they...