Frontotemporal dementia: ‘I don’t ever want to be looked at by John as a caregiver, I want him to see me as his partner’

Frontotemporal dementia: ‘I don’t ever want to be looked at by John as a caregiver, I want him to see me as his partner’

Cindy McCaffery provides support to her husband John who was diagnosed with frontotemporal dementia more than a decade ago, at age 48. Over the years, she has come to understand the importance of active living, and its apparent role in slowing down brain disease...
Who deserves caregiving support?

Who deserves caregiving support?

When does it cross into caregiving? Sometimes it seems like there are only two camps of caregivers: the ones who are martyrs who have served 24/7 for decades and the ones who view any acknowledgement of how difficult caregiving can be as sniveling. One group will...
I am a caregiver?

I am a caregiver?

Identifying as an emerging caregiver Until my mother suffered a stroke last year, I did not think of myself as a caregiver. Her health had not been great in recent years. I started to accompany her on doctor’s visits when she switched her primary care physician. I...