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“I need you to just be there. I need you to hold my story.”

“I need you to just be there. I need you to hold my story.”

by External Article | Jun 22, 2021 | Care Work Library, Caring for a Child, Finding Caregiver Support, Grief, Millennial Generation | 0 comments

In September 2020, I watched from afar as Andrew and his wife, Rachel, announced that their infant daughter, Francesca was diagnosed with an atypical teratoid rhabdoid tumor in her brain. Via his Twitter account, Andrew shared the experience during her treatment and...
Saying I Do, And Saying Farewell

Saying I Do, And Saying Farewell

by External Article | Nov 11, 2020 | Care Work Library, Caring for a Romantic Partner, Generation X, Grief | 0 comments

In 2010, after two years together as a couple, during which we almost broke up once, we learned that the headaches and blurry vision he’d been experiencing were the result of a terminal brain tumor. Neither of us could believe it. Why would a healthy, physically...
Grandma’s Dementia Made Her Forget Her Homophobia

Grandma’s Dementia Made Her Forget Her Homophobia

by External Article | Apr 1, 2019 | Care Work Library, Caring for a Grandparent, Millennial Generation | 0 comments

After watching the way my mom’s family had treated her [after she came out], my own coming out was difficult, even though I knew I’d have her by my side through it all. Not only was I worried that I would be treated the same way she had, but I also worried that they...
Forget it

Forget it

by External Article | Jun 6, 2018 | Care Work Library, Caring for a Romantic Partner, Generation X, Long Term Caregiving | 0 comments

People associate forgetfulness with age — and dementia. But this couple navigates marriage when only one of them can form new memories like most of us. Here’s how one couple has built a life — and a memorable marriage — after stroke induced...
Of Spanish and My Grandmother

Of Spanish and My Grandmother

by External Article | Aug 29, 2017 | Care Work Library, Caring for a Grandparent, Death & Dying, Generation X, Grief, Long Distance Caregiving | 0 comments

In 2007, a few years after being diagnosed with Alzheimer’s, my grandmother moved into my tía Virgi’s house in the border town of Eagle Pass. I’d been living in New York for four years when my grandmother moved in with my aunt. My mother called me to give me the...
At 25, I Became My Mother’s Caretaker

At 25, I Became My Mother’s Caretaker

by External Article | Sep 9, 2014 | 24/7 Caregiving, Care Work Library, Caring for a Parent, Long Distance Caregiving, Millennial Generation, Planning | 0 comments

Her voice sounded strained and disconnected, and I knew what she was going to say before she said it — the spot wasn’t just a cyst. It was a brain tumor. Two hours later, I was on a plane back to Colorado. Four hours later, standing at baggage claim with my cell...

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