Doctors sometimes encounter parents who object to prescribed treatment for their children, and request suboptimal substitutes be administered instead (suboptimal being defined as less effective and/or more expensive). Previous studies have focused on parental refusal of treatment and when this should be permitted, but the ethics of requests for suboptimal treatment has not been explored.
Read more on the Journal of Medical Ethics.
Everyone is talking about caregiving, but it can still be difficult to find meaningful information and real stories that go deep. We read (and listen to and watch and look at) the best content about caregiving and bring you a curated selection.
Have a great story about care work? Use our contact form to submit it to us so we can share it with the community!
"There are not yet universal standards for genetic testing, but a narrow consensus has emerged around specific conditions. The first prenatal...
Children belong at home with their families. For children with complex medical needs, this is still true. ... When children are dependent on medical...
I didn’t know about Cystic Fibrosis really until my daughter Margaret was born with it in 2019. When she was diagnosed, they told us NOT to google...
Whenever you want to talk, there’s always someone up in one of our Facebook communities.
These private Facebook groups are a space for support and encouragement — or getting it off your chest.
Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
There are no grand solutions, but there are countless little ways to make our lives better.
Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.
We have a group specifically to connect you so we can bring about change.
0 Comments