10 indespensible resources for caregivers of people on the Autism Spectrum

Currently 1 in 68 children are diagnosed with Autism or fall somewhere on the spectrum. As this number grows, it essential that people who care for persons with the disorder have support, guidance, and helpful information to turn to in times of need. As we are quickly approaching April, National Autism Awareness Month, it is important to highlight resources to help caregivers, both family and professional. Check them out below.

1. Autism Action

Autism Action’s mission is to better the lives of people who fall on the Autism Spectrum. They strive to improve the quality of persons with ADS through education, support and providing high-quality resources to the community.

2. Autism Now

Autism NOW is an amazing resource that focuses on providing the best comprehensive information for individuals with ASD (Autism Spectrum Disorder), which includes: education, health care info, aging issues and caregiver and family support.

3. Ten Things Every Child With Autism Wishes You Knew

Anyone who considers themselves a caregiver, in any sense of the word, should read this book. It serves as a guide with a wealth of information that is both helpful, supportive and enlightening. It brings a light-hearted openness to the experiences of parents with children who fall on the Autism Disorder Spectrum.

4. The PRT Pocket Guide: Pivotal Response Treatment for Autism Spectrum Disorders

The PRT Pocket Guide is a wonderful resource for parents, educators, teachers, social workers, and others who care for those with ADS. It offers a clear view of the condition and how caregivers can better understand, using real-life experiences from various people in these positions.

5. Overcoming Autism: Finding the Answers, Strategies, and Hope That Can Transform a Child’s Life

This is the second edition of Overcoming Autism by clinician Lynn Kern Koegel and writer Claire LaZebnik, who gather useful tips and information on the disorder, while taking you through the process of caring for people with ADS through a nurturing and knowledgeable lens.

6. Autism Family Online

Autism Family Online understands the challenges that families face dealing with those on the Autism Disorder Spectrum. For this reason, they offer many programs to fulfill the needs of caregivers and give them necessary tools and skills to navigate dealing with the disorder.

7.National Autism Network

National Austism Network is one of the largest online resources for people in the autism community. It provides a space to connect, learn about news, articles, events and other resources to deal with ADS.

8. Autism Speaks

Austism Speaks is a resource that offers critical research and support for caregivers. Their mission is to make strides to understand the disease and give a voice to caregivers.

9. Autism Community

Autism Community focuses on shedding light on many topics that encourage communication within the community, provide education, and resources for caregivers.

10. Centers for Disease Control and Prevention

The CDC works tirelessly to understand and combat diseases, while also providing support and information to its community and citizens. This is the go-to spot to find up-to-date information, news and extensive research on ADS.


The Caregiver Space is here to support caregivers, but we’re not the only organization that’s here to help! These are resources our community has found helpful. Please note that this isn’t an official endorsement and we’re not affiliated with these organizations.

Is there an organization or resource that’s helped you that isn’t on the list? Let us know.

Written by Amber Oliver
Amber Oliver is a graduating Senior at The City College of New York majoring in English and Creative Writing. She is also active on campus as a member of various student clubs such as the Creative Writing Club, Strive for College as a mentor for low-income students and secretary of the Black Student Union, responsible for communication and member outreach. She is also enrolled in the Publishing Certificate Program. She is currently interning at The Caregiver Space. She is interested in laughter, equality, music, literature, traveling, health, and of course, caregiving in all of its forms. She looks forward to entering the publishing field, after graduation.

Related Articles

7 Easy Ways Caregivers Can Use Technology to Keep Loved Ones Safe

7 Easy Ways Caregivers Can Use Technology to Keep Loved Ones Safe

Technology and caregiving are generally combined to improve the lives of care receivers and caregivers, improving convenience, practicality and safety of both parties. Here are seven ways that apps, gadgets and security technology help keep loved ones safe.

Popular categories

Finances
Burnout
After Caregiving
Housing
Relationships
Finding Meaning
Planning
Dying
Finding Support
Work
Grief

Don't see what you're looking for? Search the library

Share your thoughts

0 Comments

Share your thoughts and experiences

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Join our communities

Whenever you want to talk, there’s always someone up in one of our Facebook communities.

These private Facebook groups are a space for support and encouragement — or getting it off your chest.

Join our newsletter

Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).

There are no grand solutions, but there are countless little ways to make our lives better.

Share your insights

Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.

We have a group specifically to connect you so we can bring about change.