dessicated dead bat

Tired and on edge, I was worried by rumblings from my husband Brad’s doctors that they might send him home soon. At the time of the bat incident, he had been hospitalized for nearly four months in the wake of a stem cell transplant. The transplant saved his life from aggressive lymphoma, but it also nearly killed him with complications. He had lost his ability to eat, as well as his vision, and he would come home (a few weeks later, as it turned out) severely immune compromised and needing round-the-clock care.

By that time, Brad had been severely ill for more than a year. I was exhausted by the rounds of caregiving, of attending at the hospital and shuttling back and forth fuzzy socks and laundry and the homemade broth that was the only thing he could eat. I was also worn out by solo parenting and coordinating everything in our lives.

Coordinating most things wasn’t new for me. I didn’t realize how much more I was doing in terms of life maintenance until Brad was unable to do anything at all.

Read more in LitHub.

This is an external article from our library

Everyone is talking about caregiving, but it can still be difficult to find meaningful information and real stories that go deep. We read (and listen to and watch and look at) the best content about caregiving and bring you a curated selection.

Have a great story about care work? Use our contact form to submit it to us so we can share it with the community!

Related Articles

The Cruelest Marriage Penalty

The Cruelest Marriage Penalty

There’s a lot of talk about different kinds of marriage penalties in the tax code (when being legally married puts you at a disadvantage relative to...

Popular categories

After Caregiving
Finding Meaning
Finding Support

Don't see what you're looking for? Search the library

Share your thoughts


Share your thoughts and experiences

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Join our communities

Whenever you want to talk, there’s always someone up in one of our Facebook communities.

These private Facebook groups are a space for support and encouragement — or getting it off your chest.

Join our newsletter

Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).

There are no grand solutions, but there are countless little ways to make our lives better.

Share your insights

Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.

We have a group specifically to connect you so we can bring about change.