Every year thousands of children are born with serious yet unexplained health issues. With no diagnosis, they struggle to get medical treatment or much-needed support
At six years old, Polly is one of approximately 6,000 children born in the UK each year with a Syndrome Without a Name (Swan). “One of the hardest things when you don’t have a diagnosis is that you don’t know what treatments might help and what the outlook might be,” says Mandy. “When we go for appointments we have to repeat everything to all the different people involved in Polly’s care and the number of different clinicians we have to see is overwhelming.”
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