I didn’t know about Cystic Fibrosis really until my daughter Margaret was born with it in 2019. When she was diagnosed, they told us NOT to google it. That the treatments were changing and the future for M was unknown but extremely hopeful.

This week, I invited two of my idols, Julia Rae and Somer Love (two adults living with CF) to chat with me, selfishly, because I wanted to hear how they were doing. I also have been having a hard time myself dealing with the uncertainty of life (I cry through this whole interview) and wanted some hope that I knew both of them could provide simply by the fact that they are getting older.

Read more on Bad at Keeping Secrets.

Written by External Article
Everyone is talking about caregiving, but it can still be difficult to find meaningful information and real stories that go deep. We read (and listen to and watch and look at) the best content about caregiving and bring you a curated selection. Have a great story about caregiving? Use our contact form to submit it to us so we can share it with the community!

Related Articles

The Man in Room 117

The Man in Room 117

Three years ago, when he stopped taking his antipsychotic medication, her son withdrew into delusions, erupting in unpredictable and menacing...

Popular categories

Finances
Burnout
After Caregiving
Housing
Relationships
Finding Meaning
Planning
Dying
Finding Support
Work
Grief

Don't see what you're looking for? Search the library

Share your thoughts

0 Comments

Share your thoughts and experiences

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Join our communities

Whenever you want to talk, there’s always someone up in one of our Facebook communities.

These private Facebook groups are a space for support and encouragement — or getting it off your chest.

Join our newsletter

Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).

There are no grand solutions, but there are countless little ways to make our lives better.

Share your insights

Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.

We have a group specifically to connect you so we can bring about change.