Never stop hugging: Don’t treat the dying like porcelain dolls

Though I had been keeping track of my mother’s weight and vital signs like some people analyze the statistics of their fantasy football players, I was still unprepared when I saw my mother’s emaciated body in person. How much weight could one lose in a month?

A lot, when one is in so much pain they can only tolerate liquid nutrition.

And the weight kept dropping off of her, at a rate of about a pound a day. She capped out at 90 pounds before she was bedridden and the home hospice nurses switched to measuring her upper arm circumference.

Still, those scrawny arms would quickly wrap around the hospice nurse for as long as she had the strength.

My mom also suffered from osteoporosis and was deemed a fall risk because of the strong pain medications she was taking. She would cry out when I or the hospice nurses would try to move her in bed.

I proceeded to treat my mother as a Ming vase or some other precious work of art.

What I learned was that my mother, though weakened and actively dying, needed the physical expression of love more than ever.

I remember cringing when one of my mother’s caregivers came by to visit and gave Mom a big bear hug. I imagined shattered bones but instead, Mom’s spirits were lifted, and her body wasn’t any more damaged than it already was by disease.

Some people would prefer to die quietly, without a parade of family and friends paying last respects. Others, like my mother, want to soak up affection and enjoy the company of people for as long as possible.

Instead of tiptoeing around and whispering, people like my mother want to remain a part of life as long as they are living. They don’t want people to be afraid to touch them or be in the same room as them, even if they cannot interact.

My mother accepted help from me when she knew she needed it, and was grateful for it, but there was no need for me to build a protective bubble around her. Death was coming, that was certain; instead of sheltering, I should have been augmenting her last days with as much love as I could muster.

Mom believed that “hugs were healing” and would eagerly accept an embrace from anyone who she was fond of, from the grocery store clerk to her only child. Whenever I would visit, the first and last thing I received from my mom was a big hug.

As an introvert, the idea of hugging virtual strangers is a bit off-putting, but watching my mother interact so affectionately within her community proved to me that there are many people out there who welcome a warm and loving exchange. In times that seem to be filled with such hatred towards one another, my mother’s dedication to hugging was almost a novelty. Such a natural act for her made the world a better place.

How silly of me to think that something as innocuous as a hug could ever hurt her.

The science community agrees in part with the feel-good benefits of hugging. According to the National Institutes of Health, preliminary studies showed that hugging and other forms of human affection, such as holding hands, can increase the levels of oxytocin, which can improve mood and reduce anxiety. Subsequent studies have suggested that increased oxytocin levels may also be connected to undesirable traits like envy and deception. Don’t go hugging strangers on the street without their permission for an oxytocin boost; instead, concentrate on the special people in your life. Do you tell them and show them how much you love and appreciate them as often as they deserve?

As your loved ones near the end of their journey in this world, this exchange of love becomes even more important.

Hugs and their healing power are limited of course; all of the hugs in the world couldn’t stop Mom’s cancer from returning. But the dying are not museum pieces. They are flesh and blood with hearts that still feel love, up until their very last beat.

Written by Joy Johnston
Joy Johnston is an Atlanta-based digital journalist who began The Memories Project blog in 2012 after her father died of Alzheimer’s. Her essays have appeared in best-selling anthologies, including Chicken Soup for the Soul: Living with Alzheimer’s & Other Dementias.

Related Articles

Tōjisha-kenkyū

Tōjisha-kenkyū

In Japan, a radical approach called tōjisha-kenkyū has emerged to challenge the prescriptive narratives that dominate mainstream psychiatry. In...

A good death

A good death

Growing numbers of Canadians are choosing MAID, particularly in Saskatchewan. With greater awareness and acceptance, and possible expansion of...

Popular categories

Finances
Burnout
After Caregiving
Housing
Relationships
Finding Meaning
Planning
Dying
Finding Support
Work
Grief

Don't see what you're looking for? Search the library

Share your thoughts

15 Comments

  1. I hugged and kissed my parents several times a day every day. I miss them both so much. What I wouldn’t give for that hug and kiss.

    Reply
  2. It’s weird. I don’t call it dying. I call it still living. Dying seems so harsh, and if one is a believer in God, then we’re passing on to another life

    Reply
  3. YES!! I’m a touchy feely person by nature, but I ALWAYS hug my patients, touch their hands, whatever. Touch is so medicinal.

    Reply
  4. I hold hands most of the time since dad isn’t comfortable with hugs. Though, I do try to get a hug first. 🙂

    Reply
  5. Earlier on the day one of my charges passed, she beckoned me close for a hug and said “I love you.”

    Reply
  6. Very True Hugs Are Just Like Medicine Makes Both Parties Feel Better. Compassion Pass It On!

    Reply
  7. True, I hug my dad constantly! Love is the greatest medicine and he feels so good to feel loved as I feel as his love back! Those are my cherished moments!

    Reply
    • Same here, every morning I’ll give my dad his Good morning & ask for a hug, but because he had a major stroke 3yrs ago & also suffered from dementia & Alzheimer’s not every day is a good day for dad but when it is I get the biggest bear hug & when I try to step away he pulls me back in!!!!…….I cherish those moments more than I ever could imagine!!!!

      Reply
    • Claudia Mendoza similar! He has the sweetest spirit and his smile says so much ☺️

      Reply
    • Oh goodness YES!!!!…..this is my dad after my morning hug & kiss, he almost always gets a little smile afterwards!!!❤❤❤❤

      Reply
    • Claudia Mendoza God Bless you both! We are daddy’s girls! ☺️

      Reply
  8. That touched my heart.

    Reply

Leave a Reply to Guenthard ErinCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Join our communities

Whenever you want to talk, there’s always someone up in one of our Facebook communities.

These private Facebook groups are a space for support and encouragement — or getting it off your chest.

Join our newsletter

Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).

There are no grand solutions, but there are countless little ways to make our lives better.

Share your insights

Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.

We have a group specifically to connect you so we can bring about change.

%d bloggers like this: