For so many of us, our old life ended when we became a caregiver. What happens when our time as a caregiver ends?

My mother just passed away and I’m at a loss. I’ve been taking care of her for seven years, my life revolved around her. Don’t know what to do. – Michelle S.

Taking care of someone is the most fulfilling, purposeful thing we can do. And when it is over, it’s a real struggle to find real purpose. First, we need to take care of the things we have neglected at home and in our own health, etc. Then ???? It’s hard to adjust, for sure, and want to find something meaningful. I have done some volunteering and just trying to adjust to “normal” but so much seems frivolous. We can sure all relate. Hang in there, everyone! – Paula D.

I took care of my father for many years.. he’s gone now. What should I be doing? I have trouble with being kind to myself, I’ve been remembering to laugh which is a big start. – Barbara M.

I have tons of things I should be doing but also feel like I can’t move forward without him. – Elizabeth L.

I try to listen to what my body and mind tell me. Some days are very hard. Even though there are many things I want to do, I find I’m not ready yet to do them. Too emotionally drained and tired. But I’m improving. Started playing piano again after many years. – Carl U.

I gave up my job in radiology to care for my husband 24/7 a year and a half ago. He passed away at age 54 six weeks ago.I find myself trying to still do for him thinking he is at a hospital waiting for me to go see him and that he is coming home soon. He was sick with colon cancer for 13 years so the last three years that was the pattern. Home, hospital for two or three weeks and back home rehabbing till the next crisis would occur. I just cannot find my way to move forward and pick up where I left off before when he was healthy and we lived normal lives. Not many jobs open in my field now either so I feel really doomed… – Julie J.

I took care of my sister for three years… Lived with her as well.. She passed away in December, and I still feel guilty, that I could have done more for her.. I find myself now, just sitting around, or watching TV.. It’s like I am totally useless. I try to keep busy, but then the guilt comes back, and the fact that I am not depended on any more… My sister was 58 when she died, I am 50… I had no help at all, taking care of her.. I have pretty much gone into a very deep depression, and really have no one to talk too, that understands… – Jennifer G.

I was with my husband, while he passed for over a yr. with no help and spent every minute taking care of him. A trip to the store seemed like a vacation but reality would slap you in the face quickly, for too long away always sent me back to him in the floor from a fall or outside sitting on the steps where he should not have been. he was smart, he knew when i was going to the store and pretended to be asleep. I was in a rush to do everything I did and sleep was a luxury. When he passed away I left the hospital and went home, I sat on the sofa and later that day I realized I had been there on that sofa alone with no brain activity of any kind. I got up, tried to think what was next and then sat back down. The next few days were a blur and my ability to think quietly found it’s way back to me. i went about the next few days still in a hurry to everything and regardless of how many times I told myself to slow down I could not. I did not know how to sleep through the night or how to enjoy anything and laughter was hard for me. I could not remember laughing. it has been a while now and I have moved on with life but I never for one day forget how hard being a care giver is and what one goes through to bring the end of a person’s life an easy one. I know now that I will never remarry because I cannot do this again. it is the hardest thing I ever had to do. To stand by the bed of a man I was married to for 40 yrs. and hear him take his last breath, he died quietly and no one was there but me and that is how I promised him it would be. Life now is really good and no more trips in a hurry for me. Care takers are a special breed and there is a place for all of them in heaven, and it it is not care taking. – Vicky N.

I took the journey with my mom for eight years and she passed away in March. I am LOST. My mom is everywhere and I miss her smile and her kindness. – Susan Z.

I’m gonna tell you what my brother told me standing @ our mother’s grave site: “you better find a way to resurrect yourself.” after 13 years in another city and state…i’m still in recovery, still resurrecting myself..Quiet your mind. Take your time…go with the process of grieving and by all means trust God. – June W.

Your advice

As much as you can and are able, focus on being kind to yourself FIRST. – Saamia D.

I’m going to start small with a little vacation, it’s a start. – Michelle S.

The best advice I can give you is LIVE! Enjoy your life! – Vickie B.

We cared for them and when they pass away it leaves an empty space. Do things in their memory, be Active in your life. LIVE, LAUGH, LOVE and CARE. – Barbara L.

Put your caring skills to good use, but this time, care for you – Saamia D.

My suggestion is – when you are ready – find something fun with a little bit of structure. I like crafts and I am also a musician. I started to learn blacksmithing. There is something about creating an object with your own hands that reconnects you with things in a way I have a hard time explaining. – Bob B.

I do artwork, I write…many things I had no time for. – Dee S.

Could you maybe do some volunteer work at a hospital? as many or as few hours a week as you can handle. it probably help make you feel useful again. and of course, it looks good on a resume wink emoticon. I was caregiver for my disabled spouse until we separated 2 1/2 years ago (later divorced :(), I was basically forced out…. have move back in with my family, get part time jobs (until I can get to full time)… but anyways, I have found that just getting out going to work (or a volunteer position), is one of the things that has helped me the most. It allows me to forget things for a few hours, to get out of myself. and helps me to be able to move forward, even if it’s just 1/2 baby steps at a time (and trust me, there’s plenty of steps backwards, too… I have felt sometimes like I’m doing the cha-cha!!) – Rebecca H.

I promised myself after losing my mother in December… I am going to live my life and make everyday count. After taking care of her the past 11yrs and 4yrs ago I quit my job to be home with her. So now it’s all about me… Making sure I stay healthy, wise, and working. Along with having a meaningful relationship since I had to put that on hold as well. So hope you find what makes you happy and worth it! – Delphine C.

Want to read the original responses? Click here for the Facebook post. Want to share your experience? Add your comment below.

Written by Michelle Daly

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152 Comments

  1. Someone please tell me it’s goin to alright..Been my Moms caregiver for 7yrs. I brought her home from the hospital last week with Hospice.. I’m scared.

    Reply
  2. I’m the guy getting the care. I’m a real project. At times very demanding just because I can’t do it for myself. I am grateful, very frustrated & sometimes depressed knowing that my family is being effected by me. A lot of love & resentment for all of us. Reading your stories is enlightening & really hurts understanding the after effects of our journey. Please what can I do to help avoid this saga? God bless all of you.

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  3. Would love to chat with any others on this page- feel free to send me a message

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  4. With any luck, we’ll still be healthy enough to enjoy what time we have left.

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  5. I couldn’t imagine loosing my son

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  6. Our identity takes a beating. I found it helpful using a temporary “fix”, volunteer caregiving, grief support group, while I figured out who the new me was (aka the real me before the caregiving killed her off).

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  7. I took care if my disabled son for 26 years and he passed away 2 years ago and I still have trouble knowing what to do with myself. It continues to be a sad struggle.

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  8. This is hitting hard right now. My soulmate/husband/best friend passed in May this year after 16 years together. In the last 3 years caring for his needs gradually increased.

    The past year he could not leave home and I had to call emergency for him many times. I would get out to the store etc but dreaded walking in the door, afraid of what state I may find him in. He spent 2-3 weeks in hospital, often requiring intensive care. Many ongoing complications.

    My life was on hold to care for him and our daughter. I had no real life outside of his immediate needs and the constant drs and weeks of hospital stays. After he passed I was shocked into feeling nothing.

    I couldnt cry. Lost my appetite. I had no idea how to spend my time without bringing him water and meds, preparing food, spending evening watching shows together. Plus all the loose ends he left due to his health consuming our lives, I had to immediately spring into action to protect my assets. I was not prepared for that since he had assured me repeatedly that it was not going to be an issue.

    I miss him so much. I would give anything to have him back!!

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  9. A day at a time. And don’t hold back those tears and the memories.❤️

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  10. It’s been two years tomorrow our Mum has passed.I grieve for her everyday.Please know our adored ones are finally at peace,I truly know that in my heart.It doesn’t get ‘easier’,it just becomes part of the new you.God Bless you all on this bittersweet journey ❤️

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  11. Absolutely lost……

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  12. So grateful for the posts here to see you’re not alone in your feelings. Lost my mom 10 months ago after 7 yrs of caretaking. Problems now are trying to find work and long overlooked health issues. Not a pleasant looking future so far but trusting in God every day. Prayers for endurance to all here to continue and peace for those who are finished.

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  13. I worry that I’ll be permanently bitter…

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  14. This is a real concern of mine. My hubby of 58 years just passed away last month. I was his caregiver for 13 years after he had a major stroke. It left him wheelchair bound, wth aphasia. I am so lost. Feel so abandoned.

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    • You have my sympathy Barbara. I was only my wife’s caregiver for five weeks at home out of her last seven weeks, as Ovarian cancer took her so quickly, almost before it was diagnosed.

      Her cancer was confirmed on Monday, Chemo on Tuesday, and gone earl Friday morning with no chance to say goodby as her Oncologist said his plan was to send her home for the weekend.

      Together 41 years, then she was gone in an instant.

      I will warn you, if you don’t find companionship of some sort, your second year without him can be harder than the first.

      Reply
    • Dennis Bevers ,,,,, Dennis, sorry for your loss. oh my gosh, it gets worse than this? I am unable to take a deep breath, I’ve got this pesky elephant on my chest, and I can’t stop crying.

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  15. After losing Dad in January and Mum in June I now have to start my life at 46. I can’t retire and need to find paying work but I’m so lost and don’t know where to begin. Volunteer work has been suggested but I need to earn an income.

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  16. For the last 6 years or so I was looking after my dad who was dying(he passed away Dec.2011- I still can see myself sitting there at the bed) I then became my mother’s caregiver for 6 years until she passed away on April 20th.( I know exactly what song I was playing for her). During the time I was a caregiver- I put my whole life on hold and I’m only 28! Now, I go through periods of being excited about being able to move forward and there will be times where I’m so terrified. I’m learning how to look after myself( which is still a foreign concept)

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  17. Cared for my angelic Mom for eleven years. Hardest and yet rewarding job ever. Best friends. 3 yrs now she has been gone and I am just now feeling somewhat normal

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  18. Alot of different emotions for awhile

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  19. My husband past away after 15 year. I tacked care of hime every minutes. He past away one year 9 months and 9 days ago. I’ve still been living with hime. I fell very alone and useless. I don’t know how to consider my self and to accepted that he is not mor here. I’m afraid to lose hime (?)

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  20. My mom passed away in June. I cared for her for almost a decade. I started a blog to help me sort through all the aspects of caregiving that are swirling around in my brain. It’s helping. And I’m playing music again, which I never had time for before. My mom liked to stay busy; I need to stay busy, too.

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    • Eleven years with Mom. Four short hard months with Dad. Gotta have FAITH ❤

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    • I am trying to get back to our pottery studio which has been on the back burner.
      We’ll make it

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  21. Hopefully I’ll still be healthy enough to live life. I want to be carefree without all this stress. It’s taking a toll for sure, I just want peace.

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  22. We do what we can for as long as we can and don’t think of the future!

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  23. My future will be one of poverty, because while i do the caregiving, his ex gets all survivor benefits.

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  24. This couldn’t have been posted at a more perfect time….my dad, whom I have been taking care of for the past 5 years just passed away this morning….I feel so lost….I’ve forgotten how to live my life for just me…..

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    • I’m so sorry. My Dad is leaving me very very soon. The feeling is gut wrenching. I can’t imagine life without helping him. God Bless you Kelly

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    • You will find your way, Kelly. But give yourself time to grieve. This has been a long journey. You need to be okay with just stopping and breathing. Grief support will help if you’re open to that.

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    • So sorry for your loss. We understand and prayers lifted for you!!

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    • Take TIME. YOUR time. Go with all feelings. Develop routines over time or new interests.

      There is a facebook page : coping with the loss of a parent. Join us. Xx

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    • I find it so difficult Donna. I am OK if working about around the house, but if I am out, and someone is horrid or ignorant, all the feelings come to the surface : fear / loneliness / anxiety / anger.

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  25. We are still trying to put our lives back together.

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  26. My mom passed in June, still raw, but caring for my 90yo Parkinson dad. As God is giving me strength to Finish Well, caring for my dad. My husband & I have decided the next Chapter we will sell our home & RV full time. So for now we caregive & clean out all the TONS of stuff we have collected. We donate & bless others with items we have not used in years. Our plan gives us a wonderful thing to learn & dream about. When it happens I know mom will be smiling from heaven.

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  27. This is a sad situation and I include myself. All I think I can do is take it one day at a time because it is so overwhelming to think about anything other than what’s right in front of me. ❤️

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  28. My husband and I are caregivers for our adult son (36) since he was critically injured in a car crash 10 years ago (his friend fell asleep at the wheel). Yes, our lives have certainly changed, but my concern is, what will happen to our son when we pass on? We’re both almost 70… this is a real concern of mime

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    • You need to make provisions for him now for the future. Or have someone do it for you. There are places that will meet his needs even if it is in a skilled nursing home. Put your goals for him in your will.No one will take care of him like you, but at least you will feel that you’ve done your best.

      Reply
    • Lucy Comito Alpert – Oh, no, no, no!!! Never, nursing home!! We literally rescued him from one, where he’d been abused by the aides!! We have some options, but it won’t ever be a nursing home

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  29. I’m so lost and don’t have time to be…I take care of my mother 24/7 and also have a son with asperges syndrome …I have been in home health care for over 15 years and after taking care of my mother I don’t know if i can do it anymore…just to many memories to get through….I keep thinking …what the heck am I going to do….

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  30. My heart goes out to Vicki N. if you read this I am sending you love and peaceful thoughts. It’s very hard to deal with these things alone. I hope you are finding things that bring you joy❤️

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  31. Then your alone.nothing to do.just grieve.thats me.

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    • And instead of looking forward to planning trips on the long weekends, we wonder what to do to fill the das and hours alone.

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  32. So, in essence everyone on this thread considers themselves lepers of sorts. I refuse to accept it has to be this way unequivocally always!

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    • I agree, Joan. My heart goes out to everyone posting, but I feel differently than most. After caregiving, I will have more freedom and plan to visit friends and family, have more of a social life, or sometimes just relax at home without the stress of caregiving.

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    • I simply meant it is my fear. Most of us end up isolated but leaving jobs and the things we enjoyed to be caregivers. I am not complaining because I choose to take care of my parents and wouldn’t change anything about this. But after years I am fearful that my own health will be bad and I just won’t know how to start up my own life again. But believe me I will try

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    • Marianne Casey Caverley my son has a traumatic brain injury. I lost friends and my life revolves around him a friend I oversee with dementia and I work for a woman with ALS. I have exhausted all savings or gifts I received and my son is continually breaking things in my home. No resources and the program said they can’t force him out of the house so I’m being forced to live like this

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    • Not a leper Joan, but so alone.

      It’s similar to the last one in a group to marry, where they become the third wheel. Everyone else has someone, and our significant other is gone, and we become the third wheel all over again.

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    • Wendy Curtis my heart and prayers go out to you! I can’t even imagine how difficult this must be.

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  33. Don’t forget
    Looking horrible

    It’s almost 3 months for me

    Each day is better
    Just want to be left alone and still haven’t been

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  34. If only we all lived close to one another because NOBODY else truly understands.

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  35. You’re left with grief, sorrow, and emptiness.

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  36. When my handicapped son passed away after 25 years of 24/7 caregiving, well it was like I lost my purpose in life. Haven’t found it yet and it will be 11 years in two weeks since his passing.

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    • Maybe consider volunteering at a soup kitchen or a local nursing home

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  37. Most of us end up alone and in poverty.

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    • Very sad and very true, Angela.

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    • Let’s be honest. This idealism gives way to personal disaster for long term categivers. If I knew then what to expect, I would have left decades ago.

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    • After what I’ve been through, I would advise caregivers to run.

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    • Theres nothing to forgive dear. You’ve done what you could.

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    • Dont beat yourself up because everyone else abuses you.

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    • Yeah I’ve been talking care of my mom and I have become I’ll myself and I have been having to fight to get any help medical and I think I may end up dead before I can get help. I have a messed up Life now and nothing but tons of bills and pain with no light at end of this tunnel

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    • Not in poverty but I can sympathize with you on the loneliness.

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  38. My greatest fear after taking care of my parents until the end…….. what will be left of me? I can’t imagine how I will be able to continue on…….

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  39. I’m so lost and lonely now. So I working on decluttering my room, next when I get to it will be bathrooms, then maybe the kitchen. But nowhere not even ready to touch their rooms so far.

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    • :-(…I certainly understand

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  40. We really don’t know who we are or what happens next.

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  41. There is life after #caregiving. New Beginnings offers resources ideas and strategies to find the #newnormal.

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  42. I never see my friends anymore because I can barely leave the house. I can’t go to any of my son’s sporting events (he’s 9) because they’re mostly far away. I feel like a prisoner in my own home BUT I figure once dad’s no longer here I will get (hopefully) my like back. I’m only 47 and dad is 77 so I guess we’ll see.

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  43. Most employers don’t mind a gap in unemployment if you are caring for someone. If the employer doesn’t see this as a legitimate reason, is that really someone you want to work for?

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  44. I’am trying so hard with being a caregiver for my husband and it feels like I look outside of the window daily, and see everyone else’s life moving by in front of me. One of the hardest things I’ve had to do. But I wouldn’t have it any other way….I married my husband at the young age of 16 ,and we are going on 39 years of marriage and I’m almost 55

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    • I have cared for my husband for most of our time together, so I know how hard it is. The most difficult part is seeing them suffer. If it were not for the hope I have in Christ I would be a mess. Praying for you

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  45. What scares me most (besides grief , of course) is the big gap on my resume. Its hard enough finding a good job at 56.

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  46. I wonder all the time what will happen to me once my grandmother is gone and what will I do.

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  47. We need to fight for retirement rights, I have been a caregiver for my handicapped daughter Christy for 43 years now, so what do I do “God forbid” if something were to happen to her.

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    • Bless you! Your daughter is so very lucky ! I don’t know your circumstances, but maybe somewhere she could go a couple of days a week. Sometime for you to regroup recharge. I’m praying for this for you. And giving thanks for the wonderful mother you are.

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    • Mary, I understand. i am my oldest sons care provider, 28 years now. By the Grace if God I am at peace even with some health problems I have been having e passed 4 years. Hang in there. Do you get any services for your adult daughter?

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  48. My mom has been gone for three and a half years, doesn’t seem possible. We brought her to our home for the last four years of her life, not knowing it was only going to be four years. She died in the middle of the night when we were all sleeping. Later that day, my husband said, what do you want for lunch…..that is when a light bulb went off, we realized we could leave the house without leaving mom alone. I would like to tell you that since that day, I have become a recluse and it is getting worse. I can see it plain as day. I know I should do something about it but why…….I don’t have a reason other than my mom would say, get up, put on your coat and go someplace but I don’t.

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  49. My Mum went into Aged Care 6 weeks ago and my Dad passed away 3 weeks ago and I still feel guilty, like I should’ve done more. Some days it’s hard to even get out of bed. Now that my caregiver role has finished, I feel the need to go back to work part time to start with and slowly work up to full time. It won’t be easy but it’s all been worth it.

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  50. I can relate to this story because I just lost my dear mom last saturday and I am at a loss

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    • So very sorry for your loss.

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  51. i just pray that after my journey as a caregiver, my life would end too. I don’t think i still have the energy to live.

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    • God loves you! Whether or not you’re a religious person you have immense value and much to offer. Don’t cheat yourself, and don’t cheat others from knowing what an incredible person that you are!

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  52. i am looking for emplyer sponsor accept to the condition to an supporth to all finacial thak very much

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  53. i am ferdinand e ancheta looking for jobs ai private physical therapy holder register caregiver plus housekeeping i now the resbility for may job

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  54. A lot of ‘space’ to fill, and reclaiming yourself. Been there once before. Caregiver again.

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  55. It avery difficult job mental and stressful god will reward you it takes a stong giving unselfish caring loved person to caregive hang in there pray turn it to god bless you a million times over

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  56. When they need to be institutionalized and they think no one cares then they give up, but you are not available to do full time care for them. It becomes so hard. In our case we lived in another country and she was not willing to move to where we are, there are not many choices or options available.

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  57. Sometimes you quit being the caregiver because no one else in the family helps out and you just can’t anymore…the person hasn’t perished and still needs care, but you quit, pass the torch and get back to your own life, clean up the wreckage and move on and take care, good care of yourself for a change. Sad, but true. I don’t regret for one moment leaving my post as the one and only person taking care of the individual for three long years. I feel for all caregivers that are overlooked and forgotten and have lost themselves because they are abandoned. God’s Blessings to you all.

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  58. À damm big hole is left and unfillable

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  59. I am currently my mother’s fulltime caregiver and some days are better than others yet I have to try with all my might not to think of the future .for my sanity I have had to let the future become the past and concentrate on my caregiving duties while attempting things to aleviate the mental burden.

    I am currently creating a Facebook group & rabb.it channel for the purpose of helping caregivers alleviate their mind while sharing resources. If interested please let me know in a reply that you’d like to join. The more the merrier

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    • I will be sure to share a link in a little while

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    • It’s a shame there are no groups out there for caregivers to support each other and meet people with things in common once their loved ones have passed. My poor mum doesn’t know what to do with herself now she’s on her own. I try to see her when I’m not at work as much as I can but I have a family to look after too.

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    • Charlotte Sims that is what I’m trying to create

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    • Sorry I mean to meet up with. My mum isn’t on the internet. We’ve tried to encourage her to have broadband to at least give her something to do in the day but we’ve had no luck.

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    • Charlotte Sims have you tried a tablet on a limited 4g signal from a provider like at&t and starting simple with just letting her play solitaire on it till she gets the hang of it? I was finally able to peak my moms interest in technology by baiting her with a game she plays in real life and then going from there

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    • No Jane Iv not heard of that. Maybe something to look into. We’ve looked at local groups for her to get involved in but they all seem to be based around pubs and drinking which she doesn’t like. She could do with something more like a theatre/meals out group where she can meet people.

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  60. My dear husband passed away mid-December 2016. I am still struggling to get into a routine after 6 years of caregiving 24/7 except for the last couple of months when he was in care and even then it was daily visits. I have made a list of things I would like to do..when I am ready. But for now I have given myself permission to do nothing if that’s how I feel…but only for a day or 2 at a time. I promised my husband that I would be just fine so….that is what I will be

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    • Thinking of you Barb. Definitely look after yourself now.

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    • No right no wrong! Nothing is healing, resting your mind and body is so very important! Recovery from being “on” 24/7. Praying for you , that you will allow yourself just what you need!

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  61. It is extremely difficult. One foot in front of the other, one step at a time. Slowly you begin to find yourself once again. I’m still working on it.

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  62. My Mom just passed away last week..she passed away a home..cared for her over 20 yrs..she was almost 97…Iam lost

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    • Thank you…today was a hard day.. First day alone in 22 days…alot of family flew home..

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    • I am so sorry for your loss Margaret. You took care of her for many years. What a blessing you were to her. What an awesome gift to give her, allowing her to pass at home. I understand what you are feeling. If it is alright with you I would like to add you to those I pray for.

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    • Prayers would be wonderful..Thank you..Iam looking forward to going back to church..its been a very long time..many years as she couldnt be left alone..thxs

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    • So sorry for your loss. I miss my mom, too, after 5 years. Still caring for my dad at home. Don’t know what I’ll do without him. You will find yourself again. Praying.

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  63. I took care of my mom for 4 years full time, she passed away in June of last year. I had given up working to stay at home and care for her. I returned to work about 2 months after she died, I still struggle pretty much daily with what to do, I have so much that needs to be done in the house to get it ready to sell, but i find myself struggling to do it.

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    • So sorry for your loss .. sending prayers for strength

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    • Theresa Marie Loder Thank you so much

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    • So sorry. My mum is the same. Lost when they’re gone and your life is just them for so long.

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    • my heart is with you during our journey of losing our loved ones

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  64. Life will slow down if I do not go first!! i am 24/7 for my husband and help my dad, never much rest.

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  65. After what I’ve been through…I’m actually looking forward to it

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    • Same here. I loved my father very much, but I felt like I was dying right along with him. Now that he’s at peace, I am too, and beginning to crawl out of the hole. It feels good.

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  66. I am dead in the water right now. Also, getting a divorce because my ex did not understand caregiver burnout and grieving. It’s been 2 years … and NOW I can get my life back together. Some days, it was just a chore to get to work.

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    • (( hugs )) I’m burned out too hon. I feel like I’m dying

      Reply
    • I understand what you all talking about ,It is busy tell you go to bed and you still don t sleep cause you worry about them. I don t think people really know how much work it is . The stress and worry and all that goes into taking care of your love one . I worked two jobs all my life . But that was totally different then this 24/7 all the time . Some times I don t care if I do nothing . Just breath I tell my self and pray and be thankful I am here for my mom .

      Reply
    • People rarely if EVER understand our caregiving journey. Hugs ladies

      Reply
    • Hang in there! I’m sorry about your marriage. It took me a few years to find my normal. And yes some days were so hard to function. Remember this is your time now. Even if it is just reading a book, getting a manicure. Do nice things for you!

      Reply
    • Patty Hunt I will be praying for you. Remember the person you care for loves and cares for you. Ask a friend to take over for just an hour. I remember when showers were a luxury! Even if you soak in the tub, do something, just for you. I wish I would have journaled, I think getting feeling out would have helped. Pm if you ever just want to vent, no judgement here! Just support!

      Reply
  67. can appreciate and relate to the other caregivers posts and sorry for your losses. Just wondering how to handle things without the person or persons who you were caring for so long is no longer there and that is all you have known. Am trying not to take it out on other loved ones….not so easy

    Reply
  68. 13 yrs and counting caring for my husband a quad . The day he leaves this earth scares me to death . I give my heart and strength to everyone of you as you deserve and need it ,I know I do 🙂 hang in there and do it with a smile

    Reply
  69. Most of us are in the same situation. We have to reconstruct our lives.

    Reply
  70. I’ve found that I let things go around the house and I just don’t have the desire to clean things up. I guess I’m just overwhelmed and I don’t know where to start. I was so good at taking care of others but I just can’t manage to take care of myself.

    Reply

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