Complete caregiver stories archive

This page has all of our stories arranged by publication date. If you’d like to navigate our library by category, visit our main library page.

Love in the age of sickle cell disease

Love in the age of sickle cell disease

"There are not yet universal standards for genetic testing, but a narrow consensus has emerged around specific conditions. The first prenatal diagnosis for Down syndrome was made in 1968. Since then, screenings have become routine for pregnant women in many parts of...

For The First Time, Traditional Medicare Will Pay To Support Family Caregivers

For The First Time, Traditional Medicare Will Pay To Support Family Caregivers

"for the first time, Medicare will pay doctors and other providers to deliver critical support to the families of people with certain medical conditions. Medicare Advantage and other managed care models have been able to provide some of these supports. But for years,...

Poor by Design: SSI Asset Caps

Poor by Design: SSI Asset Caps

"If you receive SSI, you cannot accumulate more than $2,000 in assets, or $3,000 for couples. Though there is an exception for a home that you own and a vehicle, it’s extremely difficult for recipients to save the funds to acquire those things." ... “As a result of...

The ‘grief window’ and other myths…

The ‘grief window’ and other myths…

I’m 37-years-old now and I can see that was as impossible as raising my mum from the ground (or, more accurately, gathering up her ashes and gluing her whole again.) Would I go back and tell the younger version of myself to stop seeking a happiness she was never going...

No Amount of Time With You Would Be Enough

No Amount of Time With You Would Be Enough

I didn’t know about Cystic Fibrosis really until my daughter Margaret was born with it in 2019. When she was diagnosed, they told us NOT to google it. That the treatments were changing and the future for M was unknown but extremely hopeful. ... This week, I invited...

Staff Needs: The Spaces of Hospice

Staff Needs: The Spaces of Hospice

Hospice work suffers from the same historical undervaluing that plagues all home health labor, which has long been low-paying, often non-unionized, and relegated to women, working-class immigrants, and people of color.4 It is no coincidence that for-profit hospices...

On Self-Pity: Go Eat Worms

On Self-Pity: Go Eat Worms

"My father-in-law’s mother was an elegant, strong-willed, opinionated woman who lived to almost one hundred. Once, in her nineties, Vivian came over for dinner, and we noted that she was looking well. “Don’t say that,” she said, and added in a tone I will never...

A loved one’s dementia will break your heart. Don’t let it wreck your finances

A loved one’s dementia will break your heart. Don’t let it wreck your finances

It is among a cluster of studies that point to financial problems as a possible warning sign — rather than just the fallout — of cognitive decline. Carole Shepard, a self-employed geriatric care manager in suburban Pittsburgh, says it's best to start planning for the...

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