Complete caregiver stories archive

This page has all of our stories arranged by publication date. If you’d like to navigate our library by category, visit our main library page.

Staying in touch off of Facebook

Staying in touch off of Facebook

The Caregiver Space Facebook account has received numerous violation notices, accusing us of lying about where we're operating from, spreading misinformation, encouraging violence and suicide, and making threats. This is, unfortunately, a fact of life when platforms...

Care Tactics

Care Tactics

While the press applauds the tech sector’s forward-thinking and sensitivity to the needs of underserved populations, the concerns of disabled people—voiced again and again and again—are disregarded. So much uncritical attention gets lavished on these seductive yet...

How Talking to the Dead Dislodged Some of My Sorrow

How Talking to the Dead Dislodged Some of My Sorrow

I began leaving voice-mail messages for my mother about a month after she died. It was February last year, during some of the darkest days of the pandemic for my family. My teenage daughters were mourning their grandmother while largely cut off from their friends and...

Sex after death

Sex after death

After my husband, Fernando, had been dead for about two years, I decided to fill out a profile on Match.com. Of course, on that particular evening, I’d drunk quite a bit of wine. ... While my husband was alive, my erotic fantasies did not involve him, but now they...

Poor sleep

Poor sleep

Although sleep is a need, it is a negotiable one. Societies have historically varied in their practices, and minorities have got by on less than is needed, sometimes for a lengthy period. Everyone weighs sleep against other priorities. This plasticity is what gives...

When I Have Dementia

When I Have Dementia

“I hope you’ll still laugh at my jokes when I have dementia,” I said to my husband Ryan on an evening walk not long after my thirty-fourth birthday. It was the first time I had tried out my new resolution to stop saying “if I get dementia” and to start referring to...

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