Just When You Think Your World is Over…

As a caregiver, my life was filled with unknowns.

Would the questions that caused my sleepless nights be the problems I’d face in the light of day? How could I know what my life would be like when my caregiving days came to an end—I knew that would soon be the case. There were no miraculous cures waiting.

Should I pray for more time or less pain?

Steve and his mother Sylvia would die and I’d be left—but with what? My life was consumed by their cancers. What would be left? Self-care, sure, but what else? Tonight I decided to clear out a drawer in my nightstand and found a “quotable card” I must have left for myself to discover when I most needed it.

It has a proverb I want to share with you:

“Just when the caterpillar thought the world was over, it became a butterfly.”

Enough said.

Written by Adrienne Gruberg
Adrienne Gruberg is a former family caregiver and founder of The Caregiver Space. After six years of caring for her late husband and mother-in-law she conceived of an online support space all caregivers could come to. Adrienne holds a BFA from Boston University. She founded AYA Creative in 1982, an award winning graphic design, marketing and advertising company. Her design training has helped shape the website and her personal and professional experience continues to inform and influence the caregiver centric support experience she has created at The Caregiver Space.

Related Articles

Widow’s Peak

Widow’s Peak

She said she had something to tell me but that she was afraid. I reached for her trembling hand, telling her sweetly, naïvely, that it would be...

Making Your Workplace Safe for Grief

Making Your Workplace Safe for Grief

Grief doesn’t just come with sadness and loss. Grief can also come fully-loaded with guilt, anger, uncertainty, denial, regret, and so much more....

Popular categories

After Caregiving
Finding Meaning
Finding Support

Don't see what you're looking for? Search the library

Share your thoughts


  1. I am also living them. Thank you for sharing. Life will go on afterwards. Some how some way! We will and it will be ok. Hugs

  2. Thank you for writing this Adrienne. I understand your words because I have lived them too.


Share your thoughts and experiences

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Join our communities

Whenever you want to talk, there’s always someone up in one of our Facebook communities.

These private Facebook groups are a space for support and encouragement — or getting it off your chest.

Join our newsletter

Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).

There are no grand solutions, but there are countless little ways to make our lives better.

Share your insights

Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.

We have a group specifically to connect you so we can bring about change.

%d bloggers like this: