As a full-time working mom and a full-time medical caregiver to my 4-year-old son, I have many workspaces. My workspace is wherever my son needs me to be in that current moment, and bonus points if the space offers a sturdy seat or a dry spot of grass for my laptop.
Holding the title of “Medical Mom” means that I am the parent of a child with a medical diagnosis of disability. I am a nurse without official credentials. I am a therapist without the academic degree. I am a pharmacist despite never completing a single course that could even remotely prepare me for the level of responsibility I now hold. I am many things to my very medically complex child, and I have been since the day he was born.
‘Nobody knows what’s wrong with me’ – life with an undiagnosed condition
Every year thousands of children are born with serious yet unexplained health issues. With no diagnosis, they struggle to get medical treatment or...
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