Fourteen years ago, I remember taking my son home from the NICU.
The way the world currently supports disabled children seems, at times, to be a misuse of the word “resilience”. Somehow because you’re this “superhero” parent, it felt like many believed I could just call on more strength to endure gaps in a variety of systems – be it health, education and whatnot. As I see it, the result of all this added pressure greatly affects the overall health of parents, because they are chronically stressed.
I’m a parent of two children with a brain cancer diagnosis. We’re in the middle of a long and tiring journey
Statistics usually form the basis of awareness campaigns. Rates of incidence, survival and mortality are humanised through personal stories, such as...