Best friends teddy bear and bunny toy sitting on window sill hugging each other and looking out of windows, sunlight, sunny day. Side view. Love, family and friendship concept. stay at home, safe

Fourteen years ago, I remember taking my son home from the NICU.

The way the world currently supports disabled children seems, at times, to be a misuse of the word “resilience”. Somehow because you’re this “superhero” parent, it felt like many believed I could just call on more strength to endure gaps in a variety of systems – be it health, education and whatnot. As I see it, the result of all this added pressure greatly affects the overall health of parents, because they are chronically stressed.

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