The Caregiver Space is here to support caregivers, but we’re not the only organization that’s here to help! Here are resources our community has found helpful. Please note that this isn’t an official endorsement and we’re not affiliated with these organizations.
Is there an organization or resource that’s helped you that isn’t on the list? Let us know.
Guide to US Social Security benefits
The Official Social Security Website provides information on the benefits that people with disabilities can receive and how to apply for them. The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.
State-by-state guide for family caregivers
The Family Care Navigator helps family caregivers locate public, nonprofit, and private programs and services nearest their loved one—living at home or in a residential facility. Resources include government health and disability programs, legal resources, disease-specific organizations and more. Caregiving is challenging, but there are resources to help. This list is compiled by the Family Caregiver Alliance.
US Census data on disability
Healthy People 2020 focuses on promoting the health and well-being of people with disabilities. The U.S. Census 2000 counted 49.7 million people with some type of long-lasting condition or disability.1 An individual can get a disabling impairment or chronic condition at any point in life. Disability is part of human life, and an impairment or condition does not define individuals, their health, or their talents and abilities.
US Housing guide
The Disability.org’s Guide to Housing has information about government agencies and organizations that can help you find an affordable place to live. You’ll also find information about rental assistance programs, assisted living facilities and modifying your home to make it accessible.
A guide to keeping your home for the newly disabled
Treatments for patients with chronic illnesses make up more than 75 percent of the nation’s annual medical spending. Unfortunately, often, the financial burden placed on patients is too great, and they aren’t able to keep their homes.The Guide to Keeping Your Home Through Debilitating Disease is a resource guide by Mortgage Calculator that provides those suffering with a debilitating disease with the information they need to ensure they’re able to keep their home as they seek and receive treatment.