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“She is my rock,” Desikan types.

She is also something of an organizational and logistical wizard. Desikan is 6-foot-1 and more than 230 pounds. Moving him from his bed or wheelchair is its own undertaking, and leaving the house is a daunting task. Their support team includes two full-time caregivers during the day. Her father and his parents come every week to help, and his sister is a frequent visitor.

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