So many people in the groups are facing caregiving situations where it's impossible for them to do...
Category: Long Term Caregiving
Many people require care for decades or an entire lifetime. When caregiving is a long-term situation it needs to be sustainable for everyone involved. Long term caregivers share their struggles, their victories, and how they manage to provide care over decades without sacrificing having a life of their own.
The Underground Economy of Unpaid Care
At the time, my mom was living in Bellingham, Washington, two years into providing unpaid live-in...
Still Life
The doctor told Ann that John had severely damaged his spinal cord and was paralyzed from his neck...
Tethered to a ventilator for most of his life, how Ryan Lythall found his voice
His story? When Lythall was six-months-old, his mother, Irene, rushed him to CHEO where he had an...
I’m a working mom and my 4-year-old son’s full-time medical caregiver. Here’s what life is like
As a full-time working mom and a full-time medical caregiver to my 4-year-old son, I have many...
‘It is all about raising the profile of carers’
It was early evening, and Rebekah Zammett was about to leave her north Oxfordshire home to work a...
New York Let Residences for Kids With Serious Mental Health Problems Vanish. Desperate Families Call the Cops Instead.
Taylor searched desperately for help, signing Amari up for therapy and putting her on waitlists...
Sabrina’s Parents Love Her. But the Meltdowns Are Too Much.
Sabrina, who was given a diagnosis of autism coupled with a rare genetic disorder, has exhibited...
Sizing Up the Decisions of Older Adults
Adult Protective Services agencies in every state receive reports of possible neglect,...
The #Midwessay: Sarah Cords, You Can’t Go Home Again
Just lately it is even harder to stay in my house, my geographical middle. This is because my...
My Autistic Brother And I
Being away from Casey after growing up with him for almost 20 years is difficult. I worry about...
The Caregivers
A few years into the illness, Janie could sense it worsening. Buzz, who had never yelled at her,...
Can I Sever Ties With My Selfish Sister?
Several years ago, I told my sister that I wouldn’t be upset if we never spoke again. Recently her...
Generation X Volunteers Want to Help You, and One Day Themselves, Age at Home
Ms. McWhinney-Morse was in her mid-60s when she and a handful of others her age started laying the...
Meet the Underdog of Senior Care
Ms. Biteranta now receives all of her health care through PACE, which monitors her, along with 120...
A Disability Day of Mourning: Remembering the Murdered and the Vulnerable
On March 1 every year, disability communities gather to mourn disabled people murdered by their...
How to Coordinate a Parent’s Care With Siblings
When it becomes clear that an aging parent needs caregiving, it’s uncharted territory for adult...
When siblings become caregivers
All of Marlene’s children live within an hour of her Michigan home, yet Sheila, who lives the...
They Helped Free Britney. Now They Want Justice
Aside from Spears’ battles in court — and the one raging among fans — some #FreeBritney folks are...
When a Diagnosis Demands a Long-Term Money Strategy
A diagnosis may be alarming enough, but equally frightening can be the costs for medical...
The Care Crisis Isn’t What You Think
What my research participant made clear to me that day is that the lack of robust and accessible...
When My Wife Developed Alzheimer’s, the Story of Our Marriage Kept Us Connected
In December 2012, at age sixty-one, Judy received a diagnosis of early onset Alzheimer’s. The news...
The Art of Disability Parenting
Robert has cerebral palsy, and he has weathered multiple complications in his seven years. I don’t...
What if There’s No Such Thing as Closure?
[Pauline] Boss, an emeritus professor of family social science — the study of families and close...