When Katie MacDonald bought a new home in Brantford, Ont., this past spring, one of her main...
Category: Long Term Caregiving
Many people require care for decades or an entire lifetime. When caregiving is a long-term situation it needs to be sustainable for everyone involved. Long term caregivers share their struggles, their victories, and how they manage to provide care over decades without sacrificing having a life of their own.
Frontotemporal dementia: ‘I don’t ever want to be looked at by John as a caregiver, I want him to see me as his partner’
Cindy McCaffery provides support to her husband John who was diagnosed with frontotemporal...
The Ultimate Guide to Purée
We ate a mostly pureed diet for almost two years. Yes, I said we, because I ate what Grandma ate....
The Dangers of Caregiver Martyr Syndrome
Do people act as if you're choosing to do all that you do? And choosing to have no time for...
For family caregivers, cost of unpaid care work is both personal and professional
Canadians spend 5.7 billion unpaid hours each year on caregiving, with many of them struggling to...
Space to Breathe
I am so good at clearing my son’s airway that I am like Sam-I-Am in Green Eggs and Ham. I can...
Sharing Duties as a Family Caregiver Is Like Losing a Security Blanket
"My husband is a remarkable caregiver. He knows how to talk to ER doctors and advocate for Ladybug...
Millions worse off if PIP and disability benefits are means-tested
Millions of Britons unable to manage without disability benefits could see their support slashed...
What It’s Like Coming Out To My Grandmother—Over And Over Again
When Nonna’s memory fails her, she returns to familiar gestures. On a weekend afternoon in winter...
On #dementia TikTok, family caregivers find support and bring the disease to light
"My mom was taking care of her mom, who had Alzheimer's, [and] not telling anybody how hard it was...
Am I Obligated to Look After My Insufferable Mother?
My mother has an undiagnosed mental illness that makes her incapable of accepting reality and that...
Deinstitutionalization is one of our biggest public policy failures. Here’s how we can reverse it.
The policy began in the 1960s with the closure of psychiatric hospital beds — it was to be the...
Seeking Marriage Equality for People With Disabilities
Within weeks of the Tarpy’s date, both knew they had found their forever partner. But three months...
His PTSD, and My Struggle to Live With It
That attack marked the beginning of our struggle to navigate a relationship transformed by trauma....
How to do the impossible
So many people in the groups are facing caregiving situations where it's impossible for them to do...
The Underground Economy of Unpaid Care
At the time, my mom was living in Bellingham, Washington, two years into providing unpaid live-in...
Still Life
The doctor told Ann that John had severely damaged his spinal cord and was paralyzed from his neck...
Tethered to a ventilator for most of his life, how Ryan Lythall found his voice
His story? When Lythall was six-months-old, his mother, Irene, rushed him to CHEO where he had an...
I’m a working mom and my 4-year-old son’s full-time medical caregiver. Here’s what life is like
As a full-time working mom and a full-time medical caregiver to my 4-year-old son, I have many...
‘It is all about raising the profile of carers’
It was early evening, and Rebekah Zammett was about to leave her north Oxfordshire home to work a...
New York Let Residences for Kids With Serious Mental Health Problems Vanish. Desperate Families Call the Cops Instead.
Taylor searched desperately for help, signing Amari up for therapy and putting her on waitlists...
Sabrina’s Parents Love Her. But the Meltdowns Are Too Much.
Sabrina, who was given a diagnosis of autism coupled with a rare genetic disorder, has exhibited...
Sizing Up the Decisions of Older Adults
Adult Protective Services agencies in every state receive reports of possible neglect,...
The #Midwessay: Sarah Cords, You Can’t Go Home Again
Just lately it is even harder to stay in my house, my geographical middle. This is because my...