In 2007, I was suddenly plunged into the role of caregiver for my then 75-year-old father, who had...
Category: Long Term Caregiving
Many people require care for decades or an entire lifetime. When caregiving is a long-term situation it needs to be sustainable for everyone involved. Long term caregivers share their struggles, their victories, and how they manage to provide care over decades without sacrificing having a life of their own.
Oral Health And Memory Disorders: A Guide For Caregivers
Taking care of someone with a memory disorder is challenging. There is a lot to keep track of —...
A Field Guide to the Abeyance of Loss
Claudia cannot choose the path her life is taking. Neuromyelitis optica directs her, making life...
5 Women On the Realities of Caregiving for a Sick Partner
When someone else gets sick like that—someone you love—it can mean a complete overhaul of what...
How to Embalm Yourself Before You’re Dead
Since Mother’s death, I’ve been mothering Dad the way I’ve always wanted to be mothered. I learned...
Older spouses struggle to care for loved ones with dementia
It's been nearly four years since Russ Kellogg's wife, Frances, was diagnosed with Alzheimer's...
Provincial funding programs should allow immediate family to be paid caregivers
Vancouver resident Evan Brunelle was approved for WorkSafeBC's Self Managed Personal Care (SMPC)...
Why Siblings Are The Forgotten Caregivers
When Katie MacDonald bought a new home in Brantford, Ont., this past spring, one of her main...
Frontotemporal dementia: ‘I don’t ever want to be looked at by John as a caregiver, I want him to see me as his partner’
Cindy McCaffery provides support to her husband John who was diagnosed with frontotemporal...
The Alzheimer’s Crisis in Indian Country
Alzheimer’s is on the rise across all Americans over 65, with one in nine people in that age...
The Ultimate Guide to Purée
We ate a mostly pureed diet for almost two years. Yes, I said we, because I ate what Grandma ate....
How to Get Nurses Back in Homes Supporting Disabled Children
Finding nurses to care for medically fragile children at home has historically been difficult. But...
On hope
I knew what was going on the moment I rushed up two flights of stairs and found him. The kind of...
The Dangers of Caregiver Martyr Syndrome
Do people act as if you're choosing to do all that you do? And choosing to have no time for...
For family caregivers, cost of unpaid care work is both personal and professional
Canadians spend 5.7 billion unpaid hours each year on caregiving, with many of them struggling to...
Space to Breathe
I am so good at clearing my son’s airway that I am like Sam-I-Am in Green Eggs and Ham. I can...
Sharing Duties as a Family Caregiver Is Like Losing a Security Blanket
"My husband is a remarkable caregiver. He knows how to talk to ER doctors and advocate for Ladybug...
Millions worse off if PIP and disability benefits are means-tested
Millions of Britons unable to manage without disability benefits could see their support slashed...
What It’s Like Coming Out To My Grandmother—Over And Over Again
When Nonna’s memory fails her, she returns to familiar gestures. On a weekend afternoon in winter...
On #dementia TikTok, family caregivers find support and bring the disease to light
"My mom was taking care of her mom, who had Alzheimer's, [and] not telling anybody how hard it was...
Am I Obligated to Look After My Insufferable Mother?
My mother has an undiagnosed mental illness that makes her incapable of accepting reality and that...
Deinstitutionalization is one of our biggest public policy failures. Here’s how we can reverse it.
The policy began in the 1960s with the closure of psychiatric hospital beds — it was to be the...
Seeking Marriage Equality for People With Disabilities
Within weeks of the Tarpy’s date, both knew they had found their forever partner. But three months...
His PTSD, and My Struggle to Live With It
That attack marked the beginning of our struggle to navigate a relationship transformed by trauma....