For the past decade, [Victoria] Levack has lived, reluctantly, at the Arborstone Enhanced Care...
Category: Long Term Caregiving
Many people require care for decades or an entire lifetime. When caregiving is a long-term situation it needs to be sustainable for everyone involved. Long term caregivers share their struggles, their victories, and how they manage to provide care over decades without sacrificing having a life of their own.
Beyond Britney: Abuse, Exploitation, And Death Inside America’s Guardianship Industry
BuzzFeed News has scoured hundreds of thousands of court documents, obtained confidential mental...
The staggering, exhausting, invisible costs of caring for America’s elderly
Some older adults have diligently prepared for their future. They purchased long-term care...
Children With Disabilities Need Sex Ed Too
Currently, only three states in the country explicitly include special ed students in their sex-ed...
A Mother’s Steely Portraits of Her Daughter’s Life with Down Syndrome
For as long as Grevenitis can remember, being in public with Lulu has brought about a less welcome...
Nursing home residents and staff are traumatized from the pandemic – collaborative care can help with recovery
For older adults, social isolation may have dredged up past traumas that are difficult to come...
We can’t drug our way out of despair over Alzheimer’s
For over a century, people living with Alzheimer’s disease and their caregivers have been caught...
‘You’d walk out if your husband hit you – you can’t when it’s your child’
Most parents never have to worry about being attacked by a violent child, but if it happens, they...
My Mother, Before She Drank
My older sister and I eventually decided to involve our aunt to help figure out a way to save her....
The Autism Mom: Why Is She Like That?
The Autism Mom is an infamous villain in the autistic community. We are outraged that she wants to...
How Much Must I Give Up for My Schizophrenic Brother?
One of my brothers is moderately schizophrenic; he does well on his medication but is increasingly...
What happened when a ‘wildly irrational’ algorithm made crucial healthcare decisions
Because of his cerebral palsy, the 40-year-old, who works at an environmental engineering firm and...
How One Rural Town Without a Pharmacy Is Crowdsourcing to Get Meds
The building that once housed the last drugstore in this town of fewer than 600 is now a barbecue...
For the Disability Community, Britney Spears’ Situation Is All Too Familiar
It’s actually very difficult to end the conservatorship or guardianship under any circumstances....
Unpaid Caregivers Were Already Struggling. It’s Only Gotten Worse During The Pandemic
Two-thirds of survey respondents who identified as unpaid caregivers said they experienced mental...
After Months Of Special Education Turmoil, Families Say Schools Owe Them
Roughly 7 million children in the U.S. receive special education services under a decades-old...
A Daughter’s Diagnosis and a Refusal to Give in to Despair
The diagnosis stalked us for two years before it stepped into the light one warm March morning....
The Story Of Britney Spears Is A Story Of Disability Rights
A conservatorship — often called a guardianship — puts a court-mandated guardian in charge of...
Don’t You Want Somebody to Take Care of You?
Gina became a caregiver at a young age. By age 6, she was emotionally responsible for her mother,...
Dad, a Death Sentence and the Planner Who Set Us Straight
During my dad’s illness, I experienced firsthand what had, until then, just been book learning:...
Will we ever take care of the carers?
At the height of the lockdown in Ottawa, Donna Thomson and her husband, Jim, went to visit their...
Inside The Shocking Legal Guardianship Industry
[The Netflix movie I Care a Lot] is fiction but the story all too familiar to thousands of...
The Day His Journal Went Blank
Almost five years ago, when my father was 62, he learned he had Alzheimer’s disease. Over this...
What Losing My Disabled Mom Taught Me About Ableism
If I’ve learned anything in the five years since my mom died, it’s that grief is exceedingly...