Adult Protective Services agencies in every state receive reports of possible neglect,...
Category: Long Term Caregiving
Many people require care for decades or an entire lifetime. When caregiving is a long-term situation it needs to be sustainable for everyone involved. Long term caregivers share their struggles, their victories, and how they manage to provide care over decades without sacrificing having a life of their own.
The #Midwessay: Sarah Cords, You Can’t Go Home Again
Just lately it is even harder to stay in my house, my geographical middle. This is because my...
My Autistic Brother And I
Being away from Casey after growing up with him for almost 20 years is difficult. I worry about...
The Caregivers
A few years into the illness, Janie could sense it worsening. Buzz, who had never yelled at her,...
Can I Sever Ties With My Selfish Sister?
Several years ago, I told my sister that I wouldn’t be upset if we never spoke again. Recently her...
Generation X Volunteers Want to Help You, and One Day Themselves, Age at Home
Ms. McWhinney-Morse was in her mid-60s when she and a handful of others her age started laying the...
Meet the Underdog of Senior Care
Ms. Biteranta now receives all of her health care through PACE, which monitors her, along with 120...
A Disability Day of Mourning: Remembering the Murdered and the Vulnerable
On March 1 every year, disability communities gather to mourn disabled people murdered by their...
How to Coordinate a Parent’s Care With Siblings
When it becomes clear that an aging parent needs caregiving, it’s uncharted territory for adult...
When siblings become caregivers
All of Marlene’s children live within an hour of her Michigan home, yet Sheila, who lives the...
They Helped Free Britney. Now They Want Justice
Aside from Spears’ battles in court — and the one raging among fans — some #FreeBritney folks are...
When a Diagnosis Demands a Long-Term Money Strategy
A diagnosis may be alarming enough, but equally frightening can be the costs for medical...
The Care Crisis Isn’t What You Think
What my research participant made clear to me that day is that the lack of robust and accessible...
When My Wife Developed Alzheimer’s, the Story of Our Marriage Kept Us Connected
In December 2012, at age sixty-one, Judy received a diagnosis of early onset Alzheimer’s. The news...
The Art of Disability Parenting
Robert has cerebral palsy, and he has weathered multiple complications in his seven years. I don’t...
What if There’s No Such Thing as Closure?
[Pauline] Boss, an emeritus professor of family social science — the study of families and close...
How Nursing Homes’ Worst Offenses Are Hidden From the Public
A New York Times investigation found that at least 2,700 similarly dangerous incidents were also...
Some young adults with disabilities are stuck in long-term care. They say that’s discrimination.
For the past decade, [Victoria] Levack has lived, reluctantly, at the Arborstone Enhanced Care...
Concealment and Compassion
As we know from classical traditions of mnemonic loci, like the memory palace, memory is often...
Beyond Britney: Abuse, Exploitation, And Death Inside America’s Guardianship Industry
BuzzFeed News has scoured hundreds of thousands of court documents, obtained confidential mental...
My Stepdad Has Alzheimer’s. Can My Mom Date Someone Else?
What are your thoughts on the spouse of an early-onset Alzheimer’s patient dating while said...
The staggering, exhausting, invisible costs of caring for America’s elderly
Some older adults have diligently prepared for their future. They purchased long-term care...
Children With Disabilities Need Sex Ed Too
Currently, only three states in the country explicitly include special ed students in their sex-ed...
A Mother’s Steely Portraits of Her Daughter’s Life with Down Syndrome
For as long as Grevenitis can remember, being in public with Lulu has brought about a less welcome...