For over a century, people living with Alzheimer’s disease and their caregivers have been caught...
Category: Care Work Library
America isn’t taking care of caregivers
Dementia had not robbed Lillian of her fiercely independent spirit, but it had made her verbally...
A moment that changed me: my mother died – and I became my brother’s legal guardian
It was in Stansted airport’s Pink Elephant car park that I realised all the adults were going...
‘You’d walk out if your husband hit you – you can’t when it’s your child’
Most parents never have to worry about being attacked by a violent child, but if it happens, they...
My Mother, Before She Drank
My older sister and I eventually decided to involve our aunt to help figure out a way to save her....
The Autism Mom: Why Is She Like That?
The Autism Mom is an infamous villain in the autistic community. We are outraged that she wants to...
Making Your Workplace Safe for Grief
Grief doesn’t just come with sadness and loss. Grief can also come fully-loaded with guilt, anger,...
Care is Infrastructure and We Must Compensate Caregivers Accordingly
Donald was proud of his caregiving role. His mom had raised him and his siblings on her own, while...
How Much Must I Give Up for My Schizophrenic Brother?
One of my brothers is moderately schizophrenic; he does well on his medication but is increasingly...
Benefits and disability: ‘I’ll never cohabit again, to protect myself’
Benefits exist to support people in times of need. But for some disabled people, household...
What happened when a ‘wildly irrational’ algorithm made crucial healthcare decisions
Because of his cerebral palsy, the 40-year-old, who works at an environmental engineering firm and...
For the Disability Community, Britney Spears’ Situation Is All Too Familiar
It’s actually very difficult to end the conservatorship or guardianship under any circumstances....
Britney Spears’s Conservatorship Is a Disability Rights Issue That Deserves More Attention
Under conservatorship, disabled adults face restrictions on a wide variety of rights: Where they...
The Caregiving Crisis Didn’t Start with COVID-19—It Won’t End With Biden’s $400 Billion Plan
On March 31, 2021, Biden proposed a $2 trillion American Jobs Plan—$400 billion of which would be...
“I need you to just be there. I need you to hold my story.”
In September 2020, I watched from afar as Andrew and his wife, Rachel, announced that their infant...
Effortless: Make It Easier to Do What Matters Most
Eve turned 14, had a growth spurt, began to feel tired often, talk to us less, and took longer to...
Unpaid Caregivers Were Already Struggling. It’s Only Gotten Worse During The Pandemic
Two-thirds of survey respondents who identified as unpaid caregivers said they experienced mental...
After Months Of Special Education Turmoil, Families Say Schools Owe Them
Roughly 7 million children in the U.S. receive special education services under a decades-old...
My Aging Parents Need Parenting
I’m in my 30s and live about a three-hour drive from my 60-year-old parents—we once used to live...
Don’t Let a Loved One’s Health Problems Come Between You
I’ve seen people with difficult-to-manage physical and mental health conditions (or hard-to-break...
Why Are Boomer Parents Always Withholding Important Family News?
The only time Taylor has ever felt her mother withheld information from her was when doctors found...
A Daughter’s Diagnosis and a Refusal to Give in to Despair
The diagnosis stalked us for two years before it stepped into the light one warm March morning....
Long-term caregiving is crushing women’s finances
After Angelena Taylor’s father survived a stroke in late 2015, she snapped into crisis mode. A...
The Crisis in Home Care
Kara Ward started her life as a caregiver earlier than most people do. She was only 29 when her...