In 2010, after two years together as a couple, during which we almost broke up once, we learned...
Category: Caring for a Romantic Partner
The Peckish Patient
Brad had lost his vision along with the ability to digest food in the wake of a stem cell...
Our Shared Sickness
Housekeeping seemed simple to me: clean, tidy, wash, clean, tidy, wash, clean, tidy, wash… The...
Why Does the Richest Country in the World Rely on Volunteers for Emergency Healthcare?
The call was for a 64-year-old woman with a cough and inability to walk. But she did not appear to...
‘I am mine’: This is what Alzheimer’s is like at 41
Four years ago, Jo was diagnosed with dominantly inherited Alzheimer’s disease, an extremely rare...
At 82, My Grandmother Has Lost Her Husband — And The World As She Knows It
The disarray and social upheaval caused by the virus took a life event that’s already fraught for...
I Loved Planning My Queer, Disability-Friendly Wedding — But It Wasn’t Easy
When we recapped our thoughts about the venue later in the car, we both disappointedly took the...
Caring for the carers
Schulz and four colleagues reviewed the research on family caregiving for the disabled and ill...
She called 911 for a medical emergency. They treated her boyfriend like a criminal.
A woman calls 911 to get help when her boyfriend has a diabetic seizure. The paramedics who...
With a Chronic Illness, Sex Can Play Many Roles
“Society tends to say that if you have a chronic illness or disability, then you’re not sexual....
I Lost Some of My Genitalia at War. This Is How I Have Sex
Every genital injury has the potential to permanently alter how a person has sex. The fear of no...
How a couple got each other through cancer
In September 2015, Jessica learned that she had stage 2B breast cancer, and six months later Dan...
Struggle for Peace
It’s been quite some time since I’ve written my blog. Part of the reason is that things have been...
How my husband and I spent our final hours together
I remember the day in May 2017 when my husband was diagnosed with terminal cancer. When the...
Running in Circles: Gerbil Wheel Caregiving
This is my 23rd year in the caregiving trenches. Because I’ve cared for three generations of...
Caring for my Husband and Daughter
I am 71 years old and have been taking care of my 36 year old daughter who was born with...
Ask Dr. NerdLove: How Do I Leave An Abusive Relationship?
My partner has extreme (and untreated) anxiety, depression, and an unbelievable amount of...
The men who leave their spouses when they have a life-threatening illness
"most people – regardless of gender – do not leave their partners when they get sick. In a 2015...
If I could
Well I’ll have to say I’m guilty .. I put my hubby first when he had a stroke and heart attack,...
Can’t stop the tears
This is a lyric I wrote when Rick was in a nursing home for several months.. We had this...
Cold Day in January
This day came, and I went into the ALS Clinic on my own. The one time I did. I went to spend a...
My mom cared for my dad at home until the house fire that took her life
When a fire broke out in the home John's parents shared, his father managed to escape the fire...
Patients Want To Die At Home, But Home Hospice Care Can Be Tough On Families
Even though surveys show it's what most Americans say they want, dying at home is "not all it's...
There’s a hard rain’s a’ gonna’ fall. There’s a hard rain falling all around the world.
‘Sometimes it’s hard to know if we should be friends with so many cancer patients. We get to know...