I touch my father’s shoulder to let him know we’re here, but – for the first time – he doesn’t...
Category: Caring for a Child
Many of us are providing care to a child. Some have disabilities that were apparent at birth, while others become apparent or develop in time. Some children have conditions or injuries they recover from, while others live with life-long health management and care needs. While adults with disabilities aren’t children, posts discussing caring for adult children and grandchildren can be found here.
Learning To Let Go When Your Teen Has A Chronic Disease
On doctor’s advice, we had ceded control to my stepson over his meds. He needed to have the...
Where Should a Child Die? Hospice Homes Help Families With the Unimaginable
The Grafs had reluctantly started Parker on hospice at 7 months. “When it comes to the word...
What To Do When Your Teenager Has Depression
Now 48 years old with a child of my own, I can’t imagine how upsetting it must have been for my...
Meet The Mother Changing The Conversation Around Autism
Charlie, the oldest of Lamb’s two sons, has nonverbal autism — a form of autism spectrum disorder...
This is what parenting a child with behavior disorders looks like
Our son is seven, first diagnosed at four and a half with four additional diagnoses added in the...
The Trap House-Busting Vigilante of Pine Ridge Reservation
After Julie “Mama Julz” Richards’s own family was nearly destroyed by addiction, fighting back...
When we sent our son away
Diane Gill Morris was 25 when her first son, Kenny, was born. About 15 months later, she and her...
Home care nurses need more support to meet the needs of complex patients
In just one year, my son, Jacob, was put on Bi-Pap in the PICU on four separate occasions. Only a...
For Parents of Ill Children, a Growing Recognition of PTSD
Post-traumatic stress disorder in combat soldiers is receiving greater attention and wider...
Raising Your Kids With A Giving Heart, Despite Chronic Illness
Ashton’s passion for helping families and other children at the Ronald McDonald House is inspired...
When A Parent’s Medical Intuition Is Right
In medical school, Dr. Lambajian-Drummond says, her mentor told pediatric residents the two most...
Growing Together
Donna Thompson and Zachary White have been busy working on their upcoming book, due out in June,...
This changes everything: a look at PTSD in parents
Through recent research studies, it is clear that PTSD is a factor in the lives of parents,...
Searching for a diagnosis
How scientists are untangling the mystery of developmental disorders There are between 6,000 and...
Losing an education
Every time someone says it's worth it to go to university because "an education is the one thing...
PTSD Helps Parents Keep Their Medically Fragile Children Alive — But At What Cost?
We are built for survival, but sometimes the ways in which we survive — and ensure the survival of...
Can caring ever be a form of self care? Maybe!
Donna provides care for her son and her mom, who both need her support. But people don't need to...
How A T-Shirt Company Built An Inclusive, Visual Workplace With Trello
Caregiving isn't just a family thing, it's everything we do to help people with disabilities...
Autistic New Yorkers Share Their Stim-Toy Stories With ‘Aftereffect’
After an autistic man's stim toy was mistaken for a gun, with tragic results, NPR's Aftereffects...
Aunt Lydia’s Garden Karma
She got the [community garden] plot fifteen years ago, as a sanctuary for her son, who is on the...
The Luck of Kokura
Many people fantasize about running away and leaving it all behind. In this short story by Gary...
‘I can’t continue to do this forever’: Families with children aging out of care seek answers
Across the country, stories are piling up as families anxiously watch their children with...
Cake, balloons, goodbye: What happens when your special needs child ages out of the system
In the kitchen of their Toronto home, they prepare lunch for their 18-year-old daughter Gillian....