Sabrina, who was given a diagnosis of autism coupled with a rare genetic disorder, has exhibited...
Category: Caring for a Child
Many of us are providing care to a child. Some have disabilities that were apparent at birth, while others become apparent or develop in time. Some children have conditions or injuries they recover from, while others live with life-long health management and care needs. While adults with disabilities aren’t children, posts discussing caring for adult children and grandchildren can be found here.
A Disability Day of Mourning: Remembering the Murdered and the Vulnerable
On March 1 every year, disability communities gather to mourn disabled people murdered by their...
A hospital offered a payment plan for baby’s NICU stay — $45,843 a month for a year
Under the 2010 health law, nonprofit hospitals are required to provide financial assistance to...
The Art of Disability Parenting
Robert has cerebral palsy, and he has weathered multiple complications in his seven years. I don’t...
Some young adults with disabilities are stuck in long-term care. They say that’s discrimination.
For the past decade, [Victoria] Levack has lived, reluctantly, at the Arborstone Enhanced Care...
Friend to healthcare worker
I am currently helping friends with their severely disabled child. The child needs round-the-clock...
Beyond Britney: Abuse, Exploitation, And Death Inside America’s Guardianship Industry
BuzzFeed News has scoured hundreds of thousands of court documents, obtained confidential mental...
Children With Disabilities Need Sex Ed Too
Currently, only three states in the country explicitly include special ed students in their sex-ed...
A Mother’s Steely Portraits of Her Daughter’s Life with Down Syndrome
For as long as Grevenitis can remember, being in public with Lulu has brought about a less welcome...
America isn’t taking care of caregivers
Dementia had not robbed Lillian of her fiercely independent spirit, but it had made her verbally...
‘You’d walk out if your husband hit you – you can’t when it’s your child’
Most parents never have to worry about being attacked by a violent child, but if it happens, they...
The Autism Mom: Why Is She Like That?
The Autism Mom is an infamous villain in the autistic community. We are outraged that she wants to...
Britney Spears’s Conservatorship Is a Disability Rights Issue That Deserves More Attention
Under conservatorship, disabled adults face restrictions on a wide variety of rights: Where they...
“I need you to just be there. I need you to hold my story.”
In September 2020, I watched from afar as Andrew and his wife, Rachel, announced that their infant...
Effortless: Make It Easier to Do What Matters Most
Eve turned 14, had a growth spurt, began to feel tired often, talk to us less, and took longer to...
After Months Of Special Education Turmoil, Families Say Schools Owe Them
Roughly 7 million children in the U.S. receive special education services under a decades-old...
A Daughter’s Diagnosis and a Refusal to Give in to Despair
The diagnosis stalked us for two years before it stepped into the light one warm March morning....
The Story Of Britney Spears Is A Story Of Disability Rights
A conservatorship — often called a guardianship — puts a court-mandated guardian in charge of...
I lost my son six months ago
Fourteen years ago, I remember taking my son home from the NICU. The way the world currently...
Out there I have to smile
A few years ago on a gorgeous June day, I found myself in a windowless bathroom with forget-me-not...
Pandemic piles more onto existing ‘double layer of exhaustion’ for caregivers of kids with complex needs
Jacqui Cameron was used to the toll of her son's daily care. Seizures, feeding tubes, his...
A Disability Day of Mourning: Remembering the Murdered and the Vulnerable
On March 1 every year, communities gather to read aloud the names of disabled people killed by...
Will we ever take care of the carers?
At the height of the lockdown in Ottawa, Donna Thomson and her husband, Jim, went to visit their...
Making the Mental Load Visible
Too often we compartmentalize our caregiving — childcare, aged care, sick care, disabled care. Yet...