Children belong at home with their families. For children with complex medical needs, this is...
Category: 24/7 Caregiving
When we’re responsible for providing care around the clock, we might be there in case we’re needed, supervising someone who can’t be alone, or running a home ICU.
The Vanishing Family
Susan, the third-born, volunteered to take care of Christy full time, and Jenny, the eighth,...
My father had dementia and I was his caregiver. Here’s what I wish I had known
In 2007, I was suddenly plunged into the role of caregiver for my then 75-year-old father, who had...
Provincial funding programs should allow immediate family to be paid caregivers
Vancouver resident Evan Brunelle was approved for WorkSafeBC's Self Managed Personal Care (SMPC)...
Frontotemporal dementia: ‘I don’t ever want to be looked at by John as a caregiver, I want him to see me as his partner’
Cindy McCaffery provides support to her husband John who was diagnosed with frontotemporal...
The Alzheimer’s Crisis in Indian Country
Alzheimer’s is on the rise across all Americans over 65, with one in nine people in that age...
How to Get Nurses Back in Homes Supporting Disabled Children
Finding nurses to care for medically fragile children at home has historically been difficult. But...
The Dangers of Caregiver Martyr Syndrome
Do people act as if you're choosing to do all that you do? And choosing to have no time for...
As she nursed her mom through cancer and dementia, a tense relationship began to heal
In March 2020, Lori traveled to Florida to help Audrey move into an assisted living facility, a...
Space to Breathe
I am so good at clearing my son’s airway that I am like Sam-I-Am in Green Eggs and Ham. I can...
On #dementia TikTok, family caregivers find support and bring the disease to light
"My mom was taking care of her mom, who had Alzheimer's, [and] not telling anybody how hard it was...
At 29, I wasn’t prepared to be a caregiver. Life had other plans
I was on the subway headed to a friend’s comedy show on the Lower East Side when I received a call...
Still Life
The doctor told Ann that John had severely damaged his spinal cord and was paralyzed from his neck...
Tethered to a ventilator for most of his life, how Ryan Lythall found his voice
His story? When Lythall was six-months-old, his mother, Irene, rushed him to CHEO where he had an...
I’m a working mom and my 4-year-old son’s full-time medical caregiver. Here’s what life is like
As a full-time working mom and a full-time medical caregiver to my 4-year-old son, I have many...
When Do You Shower?
The dichotomy of bathing has become axiomatic to understanding the collars of the labor force....
Friend to healthcare worker
I am currently helping friends with their severely disabled child. The child needs round-the-clock...
We can’t drug our way out of despair over Alzheimer’s
For over a century, people living with Alzheimer’s disease and their caregivers have been caught...
I lost my son six months ago
Fourteen years ago, I remember taking my son home from the NICU. The way the world currently...
Out of the Attic: A Caregiver’s Rage and Jane Eyre
Tired and on edge, I was worried by rumblings from my husband Brad’s doctors that they might send...
The Costly, Painful, Lonely Burden of Care
After spending four months in the hospital, becoming temporarily blind and unable to walk, eat,...
Out there I have to smile
A few years ago on a gorgeous June day, I found myself in a windowless bathroom with forget-me-not...
Pandemic piles more onto existing ‘double layer of exhaustion’ for caregivers of kids with complex needs
Jacqui Cameron was used to the toll of her son's daily care. Seizures, feeding tubes, his...
50 Million Americans Are Unpaid Caregivers. We Need Help.
For four months, my husband, Brad, had been recovering from a stem-cell transplant that saved his...