From POA to Guardianship As of yesterday at 2:55pm I have been appointed Guardian of my mother by a Judge in a court of law, and it wasn’t even my petition for Guardianship. It was my sister who petitioned the court. So pay attention and remember it could happen to...
Phil Chwalinski
Sword fighting with windmills
Today I got a late certified letter from the end of June that the Medicaid appeal for backdating decision is denied. The date was June 26, after the June 23 appeal hearing. So maybe the nursing home already knew the decision on July 10 when they asked for full payment...
100 hours’ worth
Two and a half weeks work. Just to pay one bill. No groceries, no utilities, no gas. Just to pay one bill. Homeowner’s insurance. No choice. Well, maybe I could cancel the policy, but then what? Not a better solution. Next up is personal property tax for the house,...
A letter to my mom on Mother’s Day
Dear Mom, If you remember the mom you were, you don’t show it now. But I remember. That’s why I’m still here with you, and will always do the best I can for you, but it is hard. Hard to watch you decline, hard to watch the care you receive, or don’t receive, and be...
April’s fool
When I started this journey over 3 years ago I thought I had a noble purpose: to take care of my mother. Caregiving is supposed to be a gift. Countless people said what a ‘good son’ I was, and how fortunate my mom was to have such a son to help her. And now we get to...
Standing up for my mom and everyone with ALZ
Growing up I was surprised to learn not all State Capitals looked like the one in Washington, DC. Ours did in Arkansas. It looked like our US Capitol building. My mother worked there in the Secretary of State’s office. She wasn’t the Secretary, or the secretary. I...
Brutal truths: Family and Medicaid
Still waiting… like in an elevator, before the doors open. When you are forced to deplete your funds to apply for Medicaid, they (the enforcers) don’t tell you how to pay your bills after that. As long as you don’t have any money you can apply for Medicaid. Mom gets...
A nursing home nightmare
This is my second open letter. You can read the first here. So I sent that letter telling of my Mother’s plight (and mine) as an attempt to raise a warning flag, and focus awareness in an area of what I will call ‘aftercare’. There is a black hole into where this...
Where’s help for caregivers?
Open Letter to Everybody, It should not be this hard to die from Alzheimer's. If I had known how hard the end would be and how little and conflicting help I would get, I would have taken being crazy in California over crazy in Arkansas. I chose leaving California to...