The Boy Scouts of America have adopted the motto, “If you fail to prepare, prepare to fail.” I like this motto since I am a fan of organization and thinking ahead, but I find it particularly apt when applied to caregiving – and when I talk to caregivers. Preparation...
I started my journey as a caregiver advocate ten years ago, when I made the difficult decision to move in with my father to be his part-time caregiver. At the time, we thought he was suffering from Alzheimer's disease, but it never quite seemed to fit the symptoms and behaviors he was showing. Ultimately, we would receive a diagnosis of Lewy Body Dementia, which was where my interest in the disease began. I am a hospice worker, bereavement counselor, caregiver advocate, LBD support counselor, and caremanager for my father. I am also a writer, whose main focus is writing about caregiving, dementia, aging, and end of life issues. In 2011, I published a memoir about my experiences with Dad; I maintain an award-winning blog; I have published essays in two anthologies; and have written articles for other websites. My hopes for this site are to bring together all the elements of my work and vocation in one place. I strive to provide the most comprehensive and up-to-date resources and information, and the most helpful support and empathy to caregivers and people living with dementia. I invite you to investigate my site, check out the links, and read my award-winning blog, in order to find exactly the resource you are looking for.
The comfort of caregiver support groups
With honesty and grace, my members share their stories and experiences, laying their struggles out in front of others.