Claudia cannot choose the path her life is taking. Neuromyelitis optica directs her, making life smaller, confined to her hospital bed until someone pumps the hydraulic ram of a Hoyer Lift to raise her up and into a wheelchair.
Still, every morning I wake up expecting life to be like it was before her illness.
"There are not yet universal standards for genetic testing, but a narrow consensus has emerged around specific conditions. The first prenatal...
"for the first time, Medicare will pay doctors and other providers to deliver critical support to the families of people with certain medical...
Children belong at home with their families. For children with complex medical needs, this is still true. ... When children are dependent on medical...
Whenever you want to talk, there’s always someone up in one of our Facebook communities.
These private Facebook groups are a space for support and encouragement — or getting it off your chest.
Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
There are no grand solutions, but there are countless little ways to make our lives better.
Caregivers have wisdom and experience to share. Researchers, product developers, and members of the media are eager to understand the nature of care work and make a difference.
We have a group specifically to connect you so we can bring about change.
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