"I'm not really a caregiver" stories
Everyone deserves care stories
Care work is real work stories
Care Work Longreads
Care is a social justice issue stories
Care is intersectional stories
Global chain of care work stories
All relationships are interdependent stories
Mutual aid, not charity stories
The latest care work stories
I’ve always loved the puzzle genre of video games. Starting with the Infocomm text adventures of the early 80’s through Myst and similar adventure games in the 90’s to recent classics like Portal, The Talos Principle, and The Witness, I’ve spent thousands of hours of...
Before my father’s decline, he was a preeminent scholar of Black religious history. As brilliant as he’d been, I wasn’t sure, at the end of his life, that he recognized me. He had died of dementia. Now here I was in quarantine, missing him while also working online...
"My husband is a remarkable caregiver. He knows how to talk to ER doctors and advocate for Ladybug if she has a hospital stay. Yet as I watched them pull off in the SUV, I had what felt like empty energy. I was anxious because I wasn’t going. ... “You seem unsettled,”...
Millions of Britons unable to manage without disability benefits could see their support slashed if the government diverts to a means-tested system. Regardless of income, beneficiaries can currently claim up to £627 in Personal Independence Payment (PIP) or £369 in...
People in America agree: Action is needed to support family caregivers. The John A. Hartford Foundation (JAHF) asked adults living in the United States for their opinions on policies to help family caregivers, including those recommended in the 2022 National Strategy...
When Nonna’s memory fails her, she returns to familiar gestures. On a weekend afternoon in winter 2021, she offers me a piece of hard licorice candy, piles of which sit dusty in a crystal dish on her coffee table. She suggests she put on a pot of espresso. Then, she...
This afternoon, I saw an off-Broadway play called Cost of Living, by Martyna Majok. It is a brilliant play that tells the stories of people who are brought together and who are caregivers or need them. I cannot deny that I was nervous about seeing the play. I am...
Parents of children with complex medical problems have higher rates of anxiety and depression. A new study in Child: Care, Health and Development looks at how traumatic hospital experiences play a role. University of Calgary researchers interviewed 22 parents whose...
Recovery simply means a movement toward preferred ways of living one’s life. Based on a conventional medical perspective that you may have encountered before, you might conclude that the goal is to ‘fix’ your loved one. However, a recovery-oriented perspective (which...
Top Articles & Resources
Become a paid family caregiver in Canada
Become a paid family caregiver in the US
Caring for an abusive parent
When you’re at a breaking point
Dating as a family caregiver
Dealing with anger
Finding someone to talk to
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Common terms for caregiving
The actions: caretaking, care work, assisting, ADL support, direct care, care management, care coordination, care navigation
The person providing support: carer, care partner, aide, personal care assistant, home health aide (HHA), care coordinator, care navigator, case manager, care custodian, foster parent, foster caregiver, guardian, one-to-one, homemaker, live-in, care manager, nurse aide, care planner, private duty nurse, nanny to a disabled child, elder nanny, care companion, special needs parent, disability mom, disability dad, domestic helper, domestic, housekeeper, mother’s helper, family caregiver, paid caregiver, designated caregiver, partner in care
The people providing support: care team, web of care, care web, concierge, care train
The person receiving support: care recipient, caree, loved one (LO), ill spouse (IS), ward, dependent, elder, homebound, patient, client
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The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Stereotypes around who provides care leaves young people, queer people, men and masculine people, polyamorous and non-traditional families, and many others feeling like they don’t count as caregivers and don’t qualify for support. People who provide care during flares or as respite, who help a primary caregiver, who coordinate care from a distance, who manage the paperwork without providing hands-on care, are often overlooked. Their stories get lost, especially since they rarely use the term “caregiver.”
There are so many different terms used to describe caregiving and caregiving is itself an umbrella term to describe many different things. Many people who provide care don’t identify what they do with a specific label, outside of their role as a partner, friend, or other relationship. All of this can make it difficult to know who counts as a “real” caregiver.
Outside of discussing support provided by one person to another, caregiving is a term used to refer to very different things by the cannabis industry, the fetish community, and property maintenance. In psychology, “caregiver” and “caretaker” are used to label different relationship dynamics.
All of this makes it incredibly difficult to find resources that are relevant to your situation and to connect with people who’ve experienced similar circumstances. That’s why this database exists.
We curate resources our community has found insightful, powerful, and helpful. These are categorized based on the situation they discuss, type of care provided, characteristics of author, and relationship between care provider and recipient. Stories are also tagged with terms, like the disease or condition, so you can easily locate articles that relate to your life.
If supporting someone else’s physical or mental health is a big part of your life,
we recognize you and we welcome you into our community.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey