"I'm not really a caregiver" stories
Everyone deserves care stories
Care work is real work stories
Care Work Longreads
Care is a social justice issue stories
Care is intersectional stories
Global chain of care work stories
All relationships are interdependent stories
Mutual aid, not charity stories
The latest care work stories
Caring for a loving and grateful aging parent can be overwhelming at times. So, imagine what it’s like caring for someone who isn’t just struggling physically, but is also mean, manipulative, and highly self-involved. Unfortunately, some people don’t need to imagine,...
Anakinra is expensive — on average, private health plans pay about $4,000 a month for it — so we needed to get approval before it would be covered. In early September, Aetna denied the request, requiring an additional test. Our doctors ordered the test and appealed....
How did it come to be that health care is the largest sector of employment in the United States? And why is health care work so much more precarious and less heavily unionized than the dominant industries of eras past? Health care workplaces have replaced steel mills...
"Suffering from compassion fatigue does not mean you’re bad at helping or caring, it only means the scale between caring for others and caring for yourself is no longer balanced," [Lynne Hughes] says. "When you're in a role where you're nurturing and caring for others...
Caring for our parents as they age seems like the obvious way to repay them. Yet, some people ask: Can I refuse to care for an elderly parent? The question isn’t as surprising as it might seem. After all, providing care is no small task. It can be draining both...
Do people act as if you're choosing to do all that you do? And choosing to have no time for yourself? This article by Cassie Green on Kapok explains the relationship and cultural dynamics that push people into providing for others, even at great cost to themselves and...
as of 2020, more than one in six Americans was actively responsible for the daily needs and well-being of a loved one. That number only increased during the Covid-19 pandemic, as families took loved ones out of long-term care, adult day centers closed, and the paid...
There are at least three million caregivers under age twenty-five in America. The burdens they face are unprecedented. Their resolve is our only hope. ... Of those family caregivers, more than three million are members of Gen Z: young people born between 1997 and...
Helen Ries was in her forties when her father died in 2011, and then her mother in 2014, a turn of events that left her as the main caregiver for her brother Paul Knoll, who has Down syndrome. Ms. Ries moved her brother, who is now 50, into the Ottawa home she shares...
Top Articles & Resources
Become a paid family caregiver in Canada
Become a paid family caregiver in the US
Caring for an abusive parent
When you’re at a breaking point
Dating as a family caregiver
Dealing with anger
Finding someone to talk to
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Common terms for caregiving
The actions: caretaking, care work, assisting, ADL support, direct care, care management, care coordination, care navigation
The person providing support: carer, care partner, aide, personal care assistant, home health aide (HHA), care coordinator, care navigator, case manager, care custodian, foster parent, foster caregiver, guardian, one-to-one, homemaker, live-in, care manager, nurse aide, care planner, private duty nurse, nanny to a disabled child, elder nanny, care companion, special needs parent, disability mom, disability dad, domestic helper, domestic, housekeeper, mother’s helper, family caregiver, paid caregiver, designated caregiver, partner in care
The people providing support: care team, web of care, care web, concierge, care train
The person receiving support: care recipient, caree, loved one (LO), ill spouse (IS), ward, dependent, elder, homebound, patient, client
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The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Stereotypes around who provides care leaves young people, queer people, men and masculine people, polyamorous and non-traditional families, and many others feeling like they don’t count as caregivers and don’t qualify for support. People who provide care during flares or as respite, who help a primary caregiver, who coordinate care from a distance, who manage the paperwork without providing hands-on care, are often overlooked. Their stories get lost, especially since they rarely use the term “caregiver.”
There are so many different terms used to describe caregiving and caregiving is itself an umbrella term to describe many different things. Many people who provide care don’t identify what they do with a specific label, outside of their role as a partner, friend, or other relationship. All of this can make it difficult to know who counts as a “real” caregiver.
Outside of discussing support provided by one person to another, caregiving is a term used to refer to very different things by the cannabis industry, the fetish community, and property maintenance. In psychology, “caregiver” and “caretaker” are used to label different relationship dynamics.
All of this makes it incredibly difficult to find resources that are relevant to your situation and to connect with people who’ve experienced similar circumstances. That’s why this database exists.
We curate resources our community has found insightful, powerful, and helpful. These are categorized based on the situation they discuss, type of care provided, characteristics of author, and relationship between care provider and recipient. Stories are also tagged with terms, like the disease or condition, so you can easily locate articles that relate to your life.
If supporting someone else’s physical or mental health is a big part of your life,
we recognize you and we welcome you into our community.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey