"I'm not really a caregiver" stories
Everyone deserves care stories
Care work is real work stories
Care Work Longreads
Care is a social justice issue stories
Care is intersectional stories
Global chain of care work stories
All relationships are interdependent stories
Mutual aid, not charity stories
The latest care work stories
"Avis Hitchcock, a 30-year-old from Florida, has cared for their parents for six years. Both of their parents have battled two types of cancer, from which both are currently in remission. However, due to the deteriorating effects of the disease, chemotherapy and...
I first learned about the concept of psychological boundaries a little over a year ago. But something didn’t seem quite right about it. People explained to me how they understood psychological boundaries, and but the explanations didn’t seem logically consistent....
There’s a lot of talk about different kinds of marriage penalties in the tax code (when being legally married puts you at a disadvantage relative to cohabiting and filing separately). They’re well worth addressing, but for the most part, they’re a matter of putting...
In hard times, urging people to be positive doesn’t boost their resilience. It denies their reality. People in pain don’t need good vibes only. They need a hand to stay steady through all the vibrations. Strength doesn’t come from forced smiles. It comes from feeling...
That bracelet and the days surrounding his giving it to me were the one bright beam of joy in an otherwise very dark time. My mother’s longterm partner (who I dislike, but that’s a letter for another time) had a difficult bout with cancer this spring. Chemo,...
Most Sundays my parents and I sat down to a family dinner. It was a ritual we performed when I moved back home to pay off my student loans. One night in June, my dad turned to me and said, “I need you to take Steve to the hospital.” “Why me? You’re his father,” I...
When Carolita Johnson became a live-in caretaker for her 87-year-old mother, reimagining this new life as a multi-year writing residency helped her make peace with a difficult living arrangement. ... It so happened that my mother, nearly 87 and all alone in the house...
Three years ago, when he stopped taking his antipsychotic medication, her son withdrew into delusions, erupting in unpredictable and menacing outbursts. Fearful of being evicted from their apartment, she and her husband, Sam, sought a no-contact order to keep Andrey...
All about the non-physical side effects of serious illness—including social determinants of health, financial toxicity, and time toxicity—and what clinicians should do to address them. Read more in Center to Advance Palliative Care.
Top Articles & Resources
Become a paid family caregiver in Canada
Become a paid family caregiver in the US
Caring for an abusive parent
When you’re at a breaking point
Dating as a family caregiver
Dealing with anger
Finding someone to talk to
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Common terms for caregiving
The actions: caretaking, care work, assisting, ADL support, direct care, care management, care coordination, care navigation
The person providing support: carer, care partner, aide, personal care assistant, home health aide (HHA), care coordinator, care navigator, case manager, care custodian, foster parent, foster caregiver, guardian, one-to-one, homemaker, live-in, care manager, nurse aide, care planner, private duty nurse, nanny to a disabled child, elder nanny, care companion, special needs parent, disability mom, disability dad, domestic helper, domestic, housekeeper, mother’s helper, family caregiver, paid caregiver, designated caregiver, partner in care
The people providing support: care team, web of care, care web, concierge, care train
The person receiving support: care recipient, caree, loved one (LO), ill spouse (IS), ward, dependent, elder, homebound, patient, client
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The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Stereotypes around who provides care leaves young people, queer people, men and masculine people, polyamorous and non-traditional families, and many others feeling like they don’t count as caregivers and don’t qualify for support. People who provide care during flares or as respite, who help a primary caregiver, who coordinate care from a distance, who manage the paperwork without providing hands-on care, are often overlooked. Their stories get lost, especially since they rarely use the term “caregiver.”
There are so many different terms used to describe caregiving and caregiving is itself an umbrella term to describe many different things. Many people who provide care don’t identify what they do with a specific label, outside of their role as a partner, friend, or other relationship. All of this can make it difficult to know who counts as a “real” caregiver.
Outside of discussing support provided by one person to another, caregiving is a term used to refer to very different things by the cannabis industry, the fetish community, and property maintenance. In psychology, “caregiver” and “caretaker” are used to label different relationship dynamics.
All of this makes it incredibly difficult to find resources that are relevant to your situation and to connect with people who’ve experienced similar circumstances. That’s why this database exists.
We curate resources our community has found insightful, powerful, and helpful. These are categorized based on the situation they discuss, type of care provided, characteristics of author, and relationship between care provider and recipient. Stories are also tagged with terms, like the disease or condition, so you can easily locate articles that relate to your life.
If supporting someone else’s physical or mental health is a big part of your life,
we recognize you and we welcome you into our community.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey