The latest care work stories
A Brief Guide to Consenting with a Nonverbal Partner
Consent is extremely important and vital to all aspects of dating, relationships, sex and just about any kind of interpersonal interaction. Whether you want to cuddle, make out, or have or continue some kind of genital sex you will always need to seek and get...
Staying in touch off of Facebook
The Caregiver Space Facebook account has received numerous violation notices, accusing us of lying about where we're operating from, spreading misinformation, encouraging violence and suicide, and making threats. This is, unfortunately, a fact of life when platforms...
Sex and disability
Scarleteen has a fantastic collection of articles on sex and disability. While I typically only share resources about care work or directed to the person whose role is primarily as the caregiver, there are so few quality resources discussing this topic that it feels...
How to Talk About Disability With A Disabled Partner When You’re a Nondisabled Person
New relationships - whether romantic, sexual, or both - are almost always exciting, no matter who you are. But for people with disabilities in relationships with neurotypical, nondisabled partners, new relationships can be filled with anxiety, including anxiety about...
We need to address society’s unrealistic view of caregivers
Who cares? When picturing a caregiver, the person who comes to mind is almost invariably female. She is young (or young-ish). She looks healthy. She is usually in a uniform, the kind associated with nursing, to show that she is what she does. And she is never pictured...
His PTSD, and My Struggle to Live With It
That attack marked the beginning of our struggle to navigate a relationship transformed by trauma. Since then, I think I’ve read just about everything that has been written about how to support a loved one healing from post-traumatic stress. Among other things, I’ve...
How to do the impossible
So many people in the groups are facing caregiving situations where it's impossible for them to do what's required to meet the needs of the people in their lives. Accepting that we can't do it all isn't an option when the lives of people we love hang in the balance....
Jobs Aplenty, but a Shortage of Care Keeps Many Women From Benefiting
A dearth of child care and elder care choices is causing many women to reorganize their working lives and prompting some to forgo jobs altogether, hurting the economy at a moment when companies are desperate to hire, and forcing trade-offs that could impair careers....
The Underground Economy of Unpaid Care
At the time, my mom was living in Bellingham, Washington, two years into providing unpaid live-in care for her father-in-law (my step-grandfather, who I reluctantly call “Grandpa,” despite not having much of a relationship with him). He was suffering from debilitating...
Top Articles & Resources
Become a paid family caregiver in Canada
Become a paid family caregiver in the US
Compassion fatigue
Anticipatory grief
Caring for an abusive parent
When you’re at a breaking point
Dating as a family caregiver
Dealing with anger
Finding someone to talk to
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Common terms for caregiving
The actions: caretaking, care work, assisting, ADL support, direct care, care management, care coordination, care navigation
The person providing support: carer, care partner, aide, personal care assistant, home health aide (HHA), care coordinator, care navigator, case manager, care custodian, foster parent, foster caregiver, guardian, one-to-one, homemaker, live-in, care manager, nurse aide, care planner, private duty nurse, nanny to a disabled child, elder nanny, care companion, special needs parent, disability mom, disability dad, domestic helper, domestic, housekeeper, mother’s helper, family caregiver, paid caregiver, designated caregiver, partner in care
The people providing support: care team, web of care, care web, concierge, care train
The person receiving support: care recipient, caree, loved one (LO), ill spouse (IS), ward, dependent, elder, homebound, patient, client
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After Caregiving
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Don’t see what you’re looking for? Search the library
The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Stereotypes around who provides care leaves young people, queer people, men and masculine people, polyamorous and non-traditional families, and many others feeling like they don’t count as caregivers and don’t qualify for support. People who provide care during flares or as respite, who help a primary caregiver, who coordinate care from a distance, who manage the paperwork without providing hands-on care, are often overlooked. Their stories get lost, especially since they rarely use the term “caregiver.”
There are so many different terms used to describe caregiving and caregiving is itself an umbrella term to describe many different things. Many people who provide care don’t identify what they do with a specific label, outside of their role as a partner, friend, or other relationship. All of this can make it difficult to know who counts as a “real” caregiver.
Outside of discussing support provided by one person to another, caregiving is a term used to refer to very different things by the cannabis industry, the fetish community, and property maintenance. In psychology, “caregiver” and “caretaker” are used to label different relationship dynamics.
All of this makes it incredibly difficult to find resources that are relevant to your situation and to connect with people who’ve experienced similar circumstances. That’s why this database exists.
We curate resources our community has found insightful, powerful, and helpful. These are categorized based on the situation they discuss, type of care provided, characteristics of author, and relationship between care provider and recipient. Stories are also tagged with terms, like the disease or condition, so you can easily locate articles that relate to your life.
If supporting someone else’s physical or mental health is a big part of your life,
we recognize you and we welcome you into our community.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
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This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey
