The latest care work stories
On Disability and Bondage
In 2014, I suffered a horrendous roller derby injury hurting my coccyx and dislocating both hips over the span of nine months. I never even made the team; However, I did make numerous doctors appointments, x-rays, physical therapy appointments, and pill after pill...
Sizing Up the Decisions of Older Adults
Adult Protective Services agencies in every state receive reports of possible neglect, self-neglect, abuse or exploitation of older people and other vulnerable adults. But agency workers consistently face a bedeviling question: Does the adult in question have the...
How to Help Someone With Depression While Being Fair to Yourself
How much of yourself do you have to give to your partner in support, and what is the true cost if you forget yourself in the process? The fact of the matter is this: Living with a spouse with depression isn’t impossible, but the question of how to support someone with...
Caring for Her Dad Exposes Blended Family Caregiving Conflicts
While the book is replete with many humorous Conway family stories, such as her dad introducing his children to his favorite pastime — the art of horse betting at Santa Anita racetrack — or how she and her five brothers would run around the CBS sound stages to visit...
The #Midwessay: Sarah Cords, You Can’t Go Home Again
Just lately it is even harder to stay in my house, my geographical middle. This is because my siblings and I are sharing caregiving duties for our elderly mother, trying to help her stay in her own house, which is a twenty-minute drive northwest from my suburban...
My Autistic Brother And I
Being away from Casey after growing up with him for almost 20 years is difficult. I worry about him, and sometimes, the worry clouds the way I see him. But when I left home, strangely, so did that confidence in his abilities. Over the years, in my mind he's become...
The Caregivers
A few years into the illness, Janie could sense it worsening. Buzz, who had never yelled at her, now did so at the drop of a hat. Once, when she was heating up some water to make tea, Buzz towered over Janie screaming “No!” for no apparent reason. His ability to take...
The Care Economy: More State, Less Market
Every society must choose which goods and services—from education to roads to health care—to provide publicly and which to relegate to the realm of individual responsibility. Over the past five decades, political actors have used the dominant ideological paradigm,...
In Difficult Cases, ‘Families Cannot Manage Death at Home’
Where do people most want to be when they die? At home, they tell researchers — in familiar surroundings, in comfort, with the people they love. an article this month in The New England Journal of Medicine that pointedly asks, “Is There Really ‘No Place Like Home’?”...
Top Articles & Resources
Become a paid family caregiver in Canada
Become a paid family caregiver in the US
Compassion fatigue
Anticipatory grief
Caring for an abusive parent
When you’re at a breaking point
Dating as a family caregiver
Dealing with anger
Finding someone to talk to
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Common terms for caregiving
The actions: caretaking, care work, assisting, ADL support, direct care, care management, care coordination, care navigation
The person providing support: carer, care partner, aide, personal care assistant, home health aide (HHA), care coordinator, care navigator, case manager, care custodian, foster parent, foster caregiver, guardian, one-to-one, homemaker, live-in, care manager, nurse aide, care planner, private duty nurse, nanny to a disabled child, elder nanny, care companion, special needs parent, disability mom, disability dad, domestic helper, domestic, housekeeper, mother’s helper, family caregiver, paid caregiver, designated caregiver, partner in care
The people providing support: care team, web of care, care web, concierge, care train
The person receiving support: care recipient, caree, loved one (LO), ill spouse (IS), ward, dependent, elder, homebound, patient, client
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After Caregiving
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The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Stereotypes around who provides care leaves young people, queer people, men and masculine people, polyamorous and non-traditional families, and many others feeling like they don’t count as caregivers and don’t qualify for support. People who provide care during flares or as respite, who help a primary caregiver, who coordinate care from a distance, who manage the paperwork without providing hands-on care, are often overlooked. Their stories get lost, especially since they rarely use the term “caregiver.”
There are so many different terms used to describe caregiving and caregiving is itself an umbrella term to describe many different things. Many people who provide care don’t identify what they do with a specific label, outside of their role as a partner, friend, or other relationship. All of this can make it difficult to know who counts as a “real” caregiver.
Outside of discussing support provided by one person to another, caregiving is a term used to refer to very different things by the cannabis industry, the fetish community, and property maintenance. In psychology, “caregiver” and “caretaker” are used to label different relationship dynamics.
All of this makes it incredibly difficult to find resources that are relevant to your situation and to connect with people who’ve experienced similar circumstances. That’s why this database exists.
We curate resources our community has found insightful, powerful, and helpful. These are categorized based on the situation they discuss, type of care provided, characteristics of author, and relationship between care provider and recipient. Stories are also tagged with terms, like the disease or condition, so you can easily locate articles that relate to your life.
If supporting someone else’s physical or mental health is a big part of your life,
we recognize you and we welcome you into our community.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
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This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey
